Hi, anyone had experience of numbness in buttocks cheek?
I have developed this and it’s getting worse over time. I do know I have tight pelvic floor muscles, so am guessing it’s related to this? Obviously realise it’s a nerve related issue but just wondered if anyone else has encountered this who perhaps has tight pelvic floor muscles/pelvic floor pain and what they’ve done to cure it?
Thanks
I have had it for about a year and I've been going to seven months of weekly pelvic floor PT.. mine spread into the rectal area and I had a lot of pain but between the muscle relaxer and the pelvic floor physical therapy plus diligently doing my daily exercises I am improving... I also have gabapentin neurological night if I need it... I have a neurologist a pain doctor record erecto my regular doctor and the PT haven't been to the neurologist yet I have one if I need it ...it's often the pudental nerve branches are irritated due to the tight pelvic floor muscles or injury
Thanks for your reply. What you’re saying is exactly what my 2 PT’s are saying (I see one for pelvic floor therapy and one for neuro therapy), that it’s nerve irritation off one of the nerve branches of the pudendal nerve.
They’re adamant it’s not pudendal neuralgia. I think I just need some convincing though, as not 100% sure.
Nice to speak to someone who’s going through the actual same thing and who understands.
Did you say your numbness is slightly improving then?
Yes definately...what is neurotherapy?
It’s basically special neuro stretches and nerve release exercise and movements my 2nd PT performs on me weekly for about half an hour that helps tightness in nerves apparently. He’s a very well known Sports Physiotherapist who has dealt with a lot of people who suffer from nerve related problems. He also gives me special neuro stretches I have to do at home 3 times a day, alongside my pelvic floor stretches and breathing exercises I also do daily.
Oh so similar to mine...she gives me pudentàl nerve glides and mobilization...it really helps...I also do my nerve stretches and breathing at home... I didn't really understand the breathing at first but now I understand the mechanics of why it helps
I mean the stretches at home
What are the neuro stretches you do?
Difficult to explain but I’ll try.
One is where you have to sit on the end of the bed or chair slumped over with chin down and the you raise one leg and flex your ankle up and down 20 times each side.
One is a neck stretch one I have to do standing and stretching away from a wall, as he believes my tightness comes from my neck downwards.
Another is one where you kind of have to lunge forward on one leg pushing your hip out, stretching up towards the ceiling and then leaning over to one side and hold for 50 seconds.
These are the stretches I do at home
Thanks will check with my pt
hi, i have been suffering with pne for nearly five years and still in constant pain. i’m interested to hear that you are doing certain exercises which is helping with your pain. can you tell me which exercises you are doing please.?
I actually wrote them down above but I wouldn’t do them without being under supervision of a knowledgeable PT as apparently if done incorrectly they can cause more damage than good I’m told. Also these were given to me to do bespokely for my condition and I’ve been told I definitely don’t have PNE, so probably advisable to check first if I were you.
Just so yo know though this is just one of the multi things I do to help ease my pain. I see 2 different PT’s twice a week every week (one Pelvic Floor PT and one Sports PT who does Neuro work on me), I do breathwork, pelvic stretches, neck stretches and neuro stretches 5 times a day, I do internal pelvic floor stretches/releases twice a week, go to the gym to exercise or a walk every day (nerves love exercise), use Lidocaine daily, 1mg of Diazepam every night, HRT, ice and heat when I need to, take Vitamin D, take Paracetamol as and when I need it.
I’m also now looking into getting Botox injections done externally in my OI and Piriformis muscles as recommended by my PT. She said it’s help cure a few of her patients from PFD pain. I’ll have to pay for this privately though, as not available on the NHS and want my PT to attend to show the Pain Management Doctor exactly where he needs to inject.
I had internal Botox done on my pelvic floor muscles previously on the NHS but didn’t work for me unfortunately. It actually made my pain worse, so think I’m going to try externally, as not as invasive and heard it has quite a good success rate.
i fully understand what you are saying about the exercises being bespoke and it not being a good idea sharing, however your reply was extremely helpful and i thank you for this. xx
You’re very welcome. And I wish you all the best in your recovery and getting the right help for you from the right therapists for you x
Ive been told it’s weak glute muscles
Do you have numbness also in the same region then?
Yes goes numb. Also get occasional shooting pain like a needle in my buttock. Have been given gluten strengthening exercises- google Pilates clam. It has been getting worse since I started pt for pelvic floor
Sorry that should have read - was it your PT who gave you the glute strengthening exercises to do?
Yes it was
I'm surprised your PT has given you strengthening exercises to do straight away. Unless of course your pelvic floor muscles are now totally relaxed & back to normal tone.
My PT has said you have to work on relaxing & down training everything first before you start on strengthening other muscles up, as this will cause flares.
Hi interested in tbe suggestions as I’ve a similar problem but if I do those stretches it makes me flare in pain. Why?
Hi, I have suffered with right buttock muscles for 8 years, been diagnosed with Piraformis syndrome. I see an Osteopath who works away at my tight muscles. I get relief also by rolling my buttocks on a tennis ball or golf ball, stopping if I get to a particularly painful bit & sit on the ball over that particular point for 2 minutes (this area of particular painful muscle is a trigger point so I know exactly where to work with the balk). More recently I’ve developed pelvic pain near my bladder lower stomach so I’ve started doing pelvic floor exercises/strengthening, early days with this though.
Hello! I too am having discomfort in my left buttock. I’ve also had perineal/genital pain/ burning on the same side. Do you have any referred pain? My doctor has mentioned possible piriformis syndrome to me at my last visit. I’m just wondering if it is all related? I am currently seeing a pelvic pain specialist to see if I can get some relief and I have only seen him one time. I’m going in for a pudendal nerve block next week.
Sorry to hear that Betsy. I did inquire about Piriformis Syndrome but my Physio who is extremely experienced in this said I do not have that, as I have no pain in this area & doesn't hurt when I do any walking or exercising. I just have nerve issues/irritation he says.
Yup - I have had it for a few years - happens when I am sitting for any length of time.
Possibility it's not nerve damage. I have pelvic floor dysfunction, part of this condition is my pubirectalis muscle "locking"causing terrible spasms, and numbness. It also causes problems with bladder and bowel function.
I attend specialist physio who performs vaginal trigger point therapy which lessens intensity of pain but not frequency, it is short lasting but for me any thing that gives releif is worth it short lasting or not!!!
I also get botox injections into pubirectalis muscles, initially pain escalates but there is a definite improvement. Get to sit on my bottom like a normal person!!! Again short lasting you are allowed 2 treatments a year and again would recommend procedure.
Good luck with your health and hope you find a course of treatment that works for you!!!
Out of interest though Skye, do you have any pain when it locks or goes into spasm in that area or is it just numbness you feel only?
I would definitely say when muscle "locks" it's a constant spasm of pain. It affects my bowel by shutting down peristalsis movement. I feel a numbness more down in the rectal area.
It's Good you have a physio who is confident in what treatment is right for you. Mine has been a godsend and it makes a huge difference if you get the right diagnosis. Hope all goes well for you.
Apparently I did test positive for it being a nerve problem. My physio ran some tests on me which he says prove that it is and I have to say it does feel like nerve irritation to me.
I have no pain or spasms in that area and no bowel or bladder problems. Go to the toilet fine.
We think it’s possibly related to my tight short pelvic floor muscles pulling on it, irritating the nerves in that region and as my Physio explained nerve pain does tend to move around.
I was just wondering if anyone else had experienced this? It’s numbness deep into my butt cheek not actual bottom.
Apparently I did test positive for it being a nerve problem. My physio ran some tests on me which he says prove that it is and I have to say it does feel like nerve irritation to me.
I have no pain or spasms in that area and no bowel or bladder problems. Go to the toilet fine.
We think it’s possibly related to my tight short pelvic floor muscles pulling on it, irritating the nerves in that region and as my Physio explained nerve pain does tend to move around.
I was just wondering if anyone else had experienced this? It’s numbness deep into my butt cheek not actual bottom.
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