New to PP Forum: Afternoon all, I'm... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,716 members5,776 posts

New to PP Forum

5 Replies

Afternoon all,

I'm currently seeing the Pain Management Clinic in Poole who told me about this site (already on the endometriosis forum) so thought I'd join up here too. Great (sort of) to see so many people exchanging information, ideas and rants. I've had endo since I was a teenager and now at 42 have become increasingly despondent over the lack of real effective (and long-term) treatment. Mostly I have had surgeries to laser away the endo, hormonal treatment, etc. and despite removing my uterus and ovaries over ten years ago, I am still in pain - although to be fair I did have about five years of NO PAIN whatsoever which was brilliant.

Anyway, I'm glad I've joined this group too....

Read more about...
5 Replies

Welcome!

Similar story for me. Hysterectomy and ovaries removed at age 30 due to endometriosis. 10 years of no pain before prolapse surgery damaged my pudendal nerve. So good to share stories and tips on here.

Alaine1 profile image
Alaine1Administrator

Welcome to the group 😊. Your story sounds like many on here as Suzanne has already said so hopefully you will get lots of useful information and support (as well as your physios). I too have endo, alongside adenomyosis and IC.

What's the physio for if you don't mind me asking? I have physio for an over tight pelvic floor. Is that what you're having it for

in reply toAlaine1

Didn't think I mentioned physio although we've just completed some pelvic strengthening (by 'tucking' the pelvis in) and breathing exercises. I've had other physio for my sciatica but all in all I've been in too much discomfort to do that much!!

Alaine1 profile image
Alaine1Administrator in reply to

I have to admit women's physio was initially painful for the first few sessions but became a lot easier as the sessions went on. She also worked on a tight band of muscle in my pelvis that felt as though my ovary was being held down. The difference was amazing. I'm going back in a few weeks after having a brief break due to tests, appts etc so will get the pelvic floor muscles retested again

in reply toAlaine1

I'm trying to get into a hydrotherapy programme but it's not cheap (and the NHS waiting list is ENORMOUS)! I'm hoping it does improve as I'm really sore!

Not what you're looking for?

You may also like...

Vulvodynia - new member trying to gain some insight with people suffering similar symptoms

I'm so glad I've found this site as I too have been searching for cases where vulvodynia seems to...
ejp1006 profile image

Recent Lap came back clean

Hello All, I've been operating under the misapprehension that I had Endometriosis for a year now...
JackieBo profile image

desperately need help. pelvic / ovary pain. twinges, ache, sciatica, back pain, labour pains

I had a ruptured cyst 2 years ago during sex. I didn't get an ultrasound scan for a few days later...
xcht profile image

New here

Low-grade chronic pelvic pain has been part of my existence for 30 years, but for the past 9 months...
Necia profile image

Penis and testicle pain.

I've had an overactive bladder for over 3 years now and I've had various tests, everything has come...
Gardner90 profile image

Moderation team

Alaine1 profile image
Alaine1Administrator
PPSN_TracyM profile image
PPSN_TracyMAdministrator
Tree_Tops profile image
Tree_TopsModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.