I wanted to issue a challenge to sufferers and the families and friends of sufferers. If you have the energy, as I personally know how consuming the pain can get at times for the sufferers and the care takers of those with our conditions, try to write the local government official who represents you in your home country. I am going home tonight and emailing mine. We might, alone, feel like we can't initiate change, but we have to keep fighting. It is either we fight or roll over and let the ignorance and arrogance of the medical community(especially medical insurance companies) prevail. There are those in the medical community that genuinely do care about our cause, but no one with this condition should ever be told they are just crazy and druggies for wanting pain pills or proper treatment to try to have some kind of life. No one should ever be told they are just imagining or choosing a life of pain and all the horrible things it can do to our lives. We should NEVER EVER be called a hypochondriac for our legitimate life long suffering!! I tried not fighting anymore with a failed attempt on my life. I don't want anyone else, including myself, to be pushed to that point anymore. I still hope to one day have my son forgive me for my moment of weakness. While there aren't millions of us on this board, there are millions of us who suffer. Now, take the millions of us who suffer and add all of our family members and friends to that number. That could make change happen! I know everyone is tired of being bullied or ignored by a system we help fund, a system that is supposed to protect us, a system that would rather turn their heads to make more profit than a system that prides itself on human decency by taking care of it's own. If it wasn't for our taxes, our hard efforts through our own and our families' blood, sweat, and tears; our government representatives and the medical community would cease to exist. We are all of the parts that make it possible for the engine to keep pushing! It's time for them to look under the hood and see our importance!
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