I have a question for the administrat... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,737 members5,787 posts

I have a question for the administration of the site.

Debra13 profile image
11 Replies

Hello fellow suffering and administration,

I was just curious about something I thought would be a very good idea but I think we would need permission for it. What if everyone on the site wrote down in a post everything they are doing to help themselves. Including all treatments that we are presently doing and may have tried whether it didn’t work or did and right an explanation next to everything we tried. What it is and how we felt during and after. It’s just an idea. What works for one or doesn’t may help another. It’s just a theory I have. We are all different yet very much the same in our suffering. I just thought it would be nice because we aren’t all under the same cookbook if we were the same recipe would work for all of us. Thank you and God bless Deb 👍🤝🙏

Written by
Debra13 profile image
Debra13
To view profiles and participate in discussions please or .
11 Replies
Alaine1 profile image
Alaine1Administrator

Hi Debra,

That is something that could work. I could then use it to create a pinned post where self help measures, medication, surgery etc are listed for each pelvic pain condition. If someone like me has mixed pelvic pain conditions I might put the treatments by each medical condition or create a separate heading for those with mixed pelvic pain conditions.

Is this something people would be interested in?

Pommo4 profile image
Pommo4 in reply toAlaine1

Great idea!!!!

in reply toAlaine1

I agree it would be a good idea,then people could just browse through and see if there's anyone they connect to.👍

stenosis49 profile image
stenosis49 in reply toAlaine1

Yes what a good idea, we might learn from this what could help us with managing our pain differently

Alaine1 profile image
Alaine1Administrator in reply tostenosis49

Hi Stenosis49

It would be great to have your input on the new thread as to what has and hasn’t helped you. Don’t forget to include your pelvic pain condition(s). If not diagnosed simply put CPP (chronic pelvic pain).

Pommo4 profile image
Pommo4

Think it us a terrific idea. How can we di this?

Alaine1 profile image
Alaine1Administrator

We can continue on this thread or I can do a new post where people reply with their pelvic pain conditions and treatments they’ve had. I would then put them all together on one post and have it pinned for easy access. I could then add to it still as more people post. I hope that makes some sense,I know what I mean 😂

Debra13 profile image
Debra13 in reply toAlaine1

Yes, Alaina. That does make sense. This would be a great thing. I understand we are not supposed to give medical advice but it we write what we are doing one can take this to there current specialist and see if it’s safe. Can this be done. So it’s not like we are giving the advice we telling how it worked on us. So, technically we are not giving advice to use it. You have to use your own judgment and take it to your doctors and see if they think it will work for you. If you like I’ll go first with everything I’m doing and tried. Let me know and I can post it. Or send it to you in a PM and you can do with it what you like. Thank you. Deb. God bless. 👍🙏🤝 stay strong everyone. Ok.

Alaine1 profile image
Alaine1Administrator in reply toDebra13

Hi Debra,

I think I will start it on a separate post so everyone can see it. That way it is easier to find. I will do this now 🌟

Debra13 profile image
Debra13 in reply toAlaine1

Awesome Alaine. I will follow your lead. Thank you so much

Konagirl60 profile image
Konagirl60

Thanks Alaine and Debra.

Not what you're looking for?

You may also like...

I have had enough. I can’t take it anymore. Just when things look a little better.

Hello everyone, I decided to post on here and I haven’t in a while. I was starting to battle...
Debra13 profile image

Fellow suffers. Here is my history. Everything that has happened with treatment.

Dear my fellow suffering, I thought it be best to write a little narrative of how and when my...
Debra13 profile image

pelvic and rectal pain

I’ve told my story before a few years ago and still having problems with my levator ani and...
Karen1954 profile image

To all my fellow suffers particularly the lady suffers men you as well for the recital burning. I have something that can take the edge off.

Hello everyone. As many of you may know I had radio frequency done today. See previous post...
Debra13 profile image

Recovery ,improvement or ongoing pain

Hi folks i would just like to get an idea how many people are in each of these catagories of...
kalecolbe12 profile image