Pelvic Pain Support Network
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Can this be PNE or PN?

Hello everyone. I was diagnosed with localized vulvodynia (vestibulitis or vestibulodynia) about 3 months ago. I have this ongoing pain for the last 10 months and I have just recently -two months ago- developed pain around my rectal area, down my upper thighs, and my pudendal area. My symptoms are: pain in the opening of my vagina, I can't wear anything including underwear, I can't sit down because of my pain, my q-tip test was very painful -at one point I screamed.

But I have no bladder problems. I don't have any orgasm or incontinence or constipation.

Can this be PNE, PN or something else?

Lyrica and antidepressants aren't really working right now.

By the way, I never had any infections, injury, childbirth, surgery or anything. But I did squats (no so heavily though) for 5 months.

2 Replies

I think you have signs of PNE. The best thing to do is first of all go to a neurologist, although many aren't used to dealing with it. Ask for diagnostic tests to see if you have PNE. Which is an MR Neurography. Hopefully you will have an obliging neurologist. or they may refer you to pain management for a steroid injection. This can also be diagnostic of the condition. Pain relief may be limited so make sure if you are only going to be offered pain management that the pain management specialist is a PN specialist. For PNE you should have at least 4-6 weekly injections apparently. Good Luck. I hope you have good management of your condition.


Thank you so much for replying! Now that I've read my previous post, I think I was pretty unclear. Sorry for that :)

I have pain because of my localized vulvodynia, it's painful to sit, and wear underwear because of that condition. (it's been 10 months since I started having this problem)

But for the last 2 months I feel a burning sensation on my upper thighs, and once in a while around my rectal area.

I live in Turkey, and nobody knows anything about PNE here, there's this one doctor who can diagnose it but he's very expensive and I can't afford it.

I've been using Lyrica, and I wonder if this is PNE, LYrica might be helpful?

Thank you very much again, I'm 23 and I feel very hopeless since nobody really knows what this pain is like, and say this is just because of my muscles, when I know this is about nerves.


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