ENDOMETRIOSIS, PELVIC, GI PAIN SPREADING FAST IN PAIN NEED SUPPORT & URGENT HELP

[healthhealer]

My Family NEEDS Me back to full capacity, I FEEL like I am going to die without urgent help, it's been TOO long me fighting for my Health alone & no support WHILE saving my family .

[Kaiserslaurtern]

I am not sure where all of this is going but I have pudendal nerve entrapment. I am a male and I think this forum is manily for women. Let's see where this post goes.

[Pepper1977 in reply to Kaiserslaurtern]

There is a closed Facebook Group called pudendal hope, there are lots of men in the group

[sido48 in reply to Kaiserslaurtern]

Hi Kaiserslaurtern ,hate to jump in, but I may have PNE,would you mind telling me your symptims ,Thanks Colin

[Pepper1977]

Join Nancy nook it is a closed Facebook group

[Hidden]

hi health healer.

I misread your post at first "as my family needs to back me to full capacity"(sorry)and thought I so associate with you,as well as feeling the same way ive also been fighting too long and feel the same way too about not being here(for my dogs too).

my pain is there as soon as i get up and worsens with every day and no support from gp.after three years of dismissal (possibly neglect)by my GP another gp arranged the scans i needed to reveal the conditions I have(not just pelvic which remains undiagnosed at present )and i fear may be a prolapse as the persistent pain distension and "heaviness " are unbearable and disabling.I cannot function.my physio informed the gp who referred me it might be a prolapse but he didn't follow this up by saying the physio hasn't recommended a referral.surely that is the gp's responsibility?a prolapse could explain my pelvic pain and heaviness and maybe abnormal urine flow/slight leakage or it may be the TVT is no longer supporting pelvic floor muscle.but a prolapse does not explain my distended abdomen.

i have a gp appt on Tuesday and have someone coming with me.have agreed what to talk about and what needs sorting but i cant help feeling i wont get the support or the conversation will stray away from what has been agreed to ask .

R

[Shanellope93]

I don't seem to be able to see your specifically what's going on worth you or your

symptoms, but I was there recently. Ready to give up. Not able to be there for my family. I finally have hope. After 26 years I began to think that was it. Living medicated and still barely functioning. I have finally found a doctor who really cares. Believe it or there a few there. Hang in there.

[MalachiteAli]

I'm so sorry you are struggling with pain. Please get in touch with your Dr again for support and if you are feeling suicidal ring 111 or 999. You could also try the Samaritans samaritans.org/wales/how-we... endometriosis UK helpline

endometriosis-uk.org/helpline

Are you caring for children alone whilst struggling with pain?