Pelvic Pain Support Network
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pelvic pain & bleeding>> with endometriosis, i cant take much more >.<

im just looking to see if any one else has the same thing because ive had endo 5years now and i had an opperation last summer removing it all. The time had past my recovery stage and i still can not find any pace, Some of this pain is sharp feeling deep in the sides and in side my pelvis and i always would get back pain working around my rightside so much pain that when i cough i feel like barbed wire , and recantly ive been getting this alot and alot of spasms deep inside me this is becoming unberabul at times and this month past i had two periods 6 days between to full 7day heavy periods and after the last period im sill finding this pain and fatige , has anyone had something similar to this? im so tied of this

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Yes, have many years experience of this. Indescribable. Have you seen a pain specialist ? which part of the country are you ?

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no i havent seen one before, im in the north of ireland.

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Are you anywhere near Belfast ? I know there's a pain specialist there as an endometriosis patient I know well has seen someone there but not sure of his name.

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you will probably have adhesions too which will cause even more pain. They dont tell you about that part!

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yes judy im pretty close to belfast, is there any were you could advise. I really dont know anyone that i could speak to about this and i feel im going around in circels with my doctor, even when things get extreamly bad iv came to the point now were ive talked my self out of going to hospital i just dont think they can help me its always the same routine never any answers.. Lynadal_how could i find this out can you get a report or anything about the case, and the opperation

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Perhaps have a look on the main Belfast hospital website to see if they have a list of pain consultants , if not you could call the hospital and ask to speak a secretary or nurse in the pain department. They may be able to tell you who you could ask to see.

Let us know how you get on and good luck.

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Thank you so much Judy i willkeep you posted, im grateful for your help.

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You say that you get pain when you cough. I have had endo since the 1970's until hysterectomy 12 years ago. Put a pillow over your abdomen before you cough, it really helps. See your G.P. or contact a new one. There are tablets that stop the bleeding, your G.P will know - it is so long ago when I had them but it was something like declomatic acid - I have tried googline this with no success but it might be worth mentioning to your G.P. Make the most of your good days. I have had what you have and know how hard it can be. Try taking up a hobby such as knitting to take your mind off the pain when you are relaxing. Just because you have had the endo removed does not stop it coming back. I had it removed four times before I had a hysterectomy. When you feel so down with the pain it is difficult to perservere with seeing different people to try and get to the bottom of things. Write down exactly what your symptoms are and when they started and what medications etc you have had and keep it up to date to take with you when you see different consultants, it is so easy to forget or get fed up with repeating things. Good luck with the pain consultants in Belfast but also try to see a Gynocologist (still have trouble spelling this). Thinking of you.

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Thankyou so much for ur kind reply and advise ill take this on board yes i think ive had them before matibic acid r something.. And the pillow advise really works i actually forgot i was told this after surgery . Thankuou im trying to take control see a pain sppecilest and get my life back

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Just wondered how you are going on - been thinking of you. Love Velma x

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