After visited a standard gynae at Croyden and a rather rude neurologist at Croyden, I have been referred to University College Hospital at their Centre for interdisciplinary medicine. They have a whole team of people that specialise in pelvic pain - I had a consultation with a Uro-neurologist (that is the urinery system and the nerves in it). The whole team is made up of urologist, neurologist, gynae, physio, psychologist, anaesthesilogists (for the medication or nerve blocks). They offer a range of treatments depending on the problem. It's an NHS centre and anyone with pelvic pain can be referred there I believe, their pain management centre also has sub-teams for different specialties, but this one is particularly for pelvic pain. I had to wait six months for an appointment, but so far worth it, I found the appointment to be excellent, they new what I was talking about, asked all the right questions and they reassured me that they can help. I wanted to post as all the forums I first visited said that I would have to pay for expensive treatment in France, I mentioned to the nurse and she said that there is a lot of misinformation and that there are NHS services. I suppose it's about GP education. I think the clinic accepts GP referrals, but at least your GP can call them up to ask if it needs to be a neurologist that makes the referral. Here is all the information and links to the patient resources they recommend. These are resources that have been vetted by the team so they are sure they do not contain mis-information. I was pleased to see Headache i the Pelvis and Heal Pelvic Pain by Amy Stein on there, both found really useful.
This is what they say about the clinic:
The Pain Management Centre has pioneered the multi-professional treatment of pain perceived in the pelvis or abdomen. Four consultants and a senior nurse specialist form the initial assessment team and have close links to gynaecologists, urologists, gastroenterologists and colorectal surgeons within UCLH. We offer a comprehensive assessment and investigation where necessary which may include urodynamics, pelvic MRI neurography, plus diagnostic and therapeutic injections such as Xray, ultrasound and CT guided injections. Our close relationship with UCLH Endometriosis Centre means that women with painful endometriosis can move seamlessly from gynaecological care to pain management.
Our world leading pain management programme named Link is specific for those with abdominal and/or pelvic pain and runs three times a year for women and twice for men. Patients may be considered for a trial of sacral nerve stimulation for bowel and bladder dysfunction with our uroneurology or colorectal colleagues or for pain if indicated and within in context of our multidisciplinary team.
Here are the links:
Pain Management Centre