Embolize blood vessel - anyone?

[unlucky2014]

Has anyone had their Pelvic Blood Vessel embolized after suffering with Pelvic Congestion Syndrome (PCS) ?

And if you did, did you get it done on the NHS (if your in the UK)?

Please let me know

[wren44]

I did, at Johns Hopkins, in the US. Dr. Venbrux (I think) it's been a decade ago. It did NOTHING. For me, it was a total waste of time and very expensive. After 15 years dealing with pelvic pain (started with a C-section) I believe the key is a really really well trained PT and lots of stretching and mobilizing.

[Dchristine in reply to wren44]

i have PCS and, like you, had a full hysterectomy, which didn't help at all. I'm just starting to research the embolizatiin route and so appreciate your feedback on it. Are there other treatments you've tried? I'm thinking of trying a TENS machine.

[unlucky2014 in reply to Dchristine]

Hi,

I tried alot of things, anything and everything to eb honest. However because the reflux was extremely bad in my left ovary and my two iliacs it meant an embolisation was better suited to my body.

I've now had the embolisation and I am completely symptom free.

I do understand from The Whiteley Clinic that sometimes hysterectomy isn't always the best option as it doesn't actually remove the veins contributing to pelvic congestion. It might be worth emailing them or watching some youtube videos that they've created to understand the condition more.

Feel free to ask me any questions

[Dchristine in reply to unlucky2014]

Congratulations on being symptom free. That's great to hear. I will definitely look them up and do some research!