Hi everyone, hope you are all having one of the good days!
I have a 3 year history of chronic pelvic pain that's complicated but to summarise:-
5 surgeries for endo, removal of ovarian dermoid cysts, ovary and adhesions/scar tissue, hysterectomy and removal of other ovary.
My latest surgery was the hyst and the surgeon was wonderful, unfortunatly I still have groin pain and also leg pain that I have been told is neuropathic pain. I have now been discharged form gynae.
I have been to the local pain management service and had 1 nerve block done which didn't do much. At my last visit it was obvious that the consultant thought I was exaggerating my pain and he didn't seem to believe that I am having lots of mobility problems as a result.
I am considering a private appointment with the clinic in Bristol run by Dr Greenslade.
When looking through other posts I can see lots of good recommendations but they all seem related to pudental nerve problems. I have been told my problem could be genito-femoral nerve or maybe ilioinguinal nerve or obturator but no-one has mentioned pudental. I actually think its a combination of maybe all 3 different nerves.
Does the clinic also deal with these other pelvic nerves or just pudental nerve? I haven't been able to work for ages so can't afford to waste money on an appointment if it is not necessary.
I have applied for DLA payments but my consultant has said he thinks my problem isn't permanent but will last years (which I think means I won't get it) so it's important both for myself and for DLA to get a correct diagnosis and likelihood of getting better.
Has anyone been to this clinic for either pudental or other pelvic nerve problems? How did you find it?
Am I right in thinking the only places in the UK that specialise in pelvic nerves are in Bristol, London or Oxford?
Thanks for reading x