Does anyone think Pain Management courses are a way of fobbing you off?

[Hugo3596]

I just wonder if this psychotherapy and multi discipline approach to nerve pain is a case of we can't fix it but we need to show we've done something?

Has anyone had a positive Hospital pain management experience?

[jacquieb Volunteer]

For me no, purely because, by the time you get to the end of the multidisciplinary line you have had enough!

[jomoney]

That's exactly how I feel im under pain management , have acupuncture twice a week and just feel like they r offering it me as there's nothing else for me feel they r initially really interested and I think thank goodness then they drop me its almost like they research it and find there's no cure

[stlouise]

Yes I believe it is cause they cant be bothered to help us . Ive had severe pains for over a year now in my abdomen and still don't know what it is. Had tests done and scans and nothing found and im still in alot of pain . Pain clinic does nothing for me .

[Hugo3596]

Sadly your replies are what I expected

[Hidden in reply to Hugo3596]

Unfortunately I believe they think they are helping.... Which is unfortunate because they are basically saying there hasn't been enough research yet for us to find out whats wrong in your body so we are going to show you how to "take care of your back and pelvic muscles" and heres a psychologist to help you get used to the fact that you might be in pain for the rest of your life. Im sorry this is negative but Im starting a BACKPACK course next Tuesday because after 7years of testing and medications and diagnostic surgery they think I may have a muscular functional problem or something.... I will be asking them about treatment for trigger points and myofascial trigger point release as well as anaesthetic injections because I read the medical guidelines myself so I could know what else there was that they hadn't tried yet.

[bexCollins]

Have had not so positive experience of pain team. In fact I have even had to put in a formal complaint. My current doctor has been good although found focuse so much on nerve pain that totally missed fact I also had adhesions.

My experience is that verydismissive and at times, patronising.

Mixed bag.

Only been offered injections and medications. Would feel offended if offered therapy.

[JudyRentz]

Hugo,don't you have pudendal entrapment? Yes a lot of therapists think you can mind over matter.they obviously have never had nerve pain! I don't know what fobbing is ,but it is a rip off! Judy r

[Hugo3596 in reply to JudyRentz]

Hi JudyR,

Right now I'm assuming I have PN, subject to a formal diagnosis sometime next year?

As for could a pelvic nerve be entrapped? Who knows and without being cut open and dissected, I can't see how anyone can truly know what is going on in that small but crowded space.

Yes I have some nerve pain from penis to groin and sometimes buttocks into top of thighs. But my worst symptoms currently are always at night when I get into bed when I feel like I'm on fire and sweat buckets. Last night even though it was 2c I spent the night naked on top of the duvet sweating. So didn't sleep very well. Body temp is normal though! Hope that symptom passes before the heat of summer arrives!

But I'm not the giving up type and I'm not likely to respond very well to a pain management course that has a psychological element to it, given that I'm already of a positive mind set.

So yes I believe if you remain physically active and physically challenge yourself, then you will produce endorphins which are the bodies natural pain killer. Plus they give you a natural high.

But I was curious to know if anyone had actually benefited from doing a course in pain management? Or would I be better off having a good sweaty workout at the gym, should I get offered that course? Lol

[JudyRentz]

Hugo,how can you wait until sometime next year ? Really,you do not. Have to be cut open to know.the extent in pain may depend on the extent of you illness.but,there is no need to go to anyone except a true pelvic pain specialist,neuros and orthopedic rarely know.i work so hard to spread the word,it is a killer,depending on the severity .....I had been to so many drs. I was becoming so skeptical......how help came is a long GOD story,but,we finally had a name.....this disease,not syndrome, is such a nightmare and Drs.don't seem to want to learn.........we have three specialist in theUS,or surgeons , and one in France,to everyone's knowledge,such ashame...I just the 11th had surgery in MN. With [e-mail] . Some pain,pressure,but not MY pain of seven years. This monster just elevates to the most horrendous pain....I have a very poor quality video on YouTube,Judy Rentz ,pudendal entrapment. Get help.Dr is so hopeful and I expect a miracle after 7 yrs of constant pain...judyr

[JudyRentz]

Read my answer to Hugo .I just put out a YouTube,judy Rentz,pudendal neuropathy.explains a lot. I just had surger, I am joy filled.....Judy r

[JudyRentz]

Sorry,see my reply after Hugo.

[Hidden]

Hugo, you can have nerve blocks to identify WHERE the pain is coming from!! Ask your pain specialist to provide you with nerve blocks starting in the S1 region down. The nerve blocks are painless and they can determine the exact location of where the pain is manifesting itself. I am in the US and was fortunate to have the nerve blocks as a primary indicator for determination, NEVER have surgery until you have a diagnosis!! Every time they open you up, you open yourself to further complications.