Has anyone else here experienced leg paraly... - PBC Foundation

PBC Foundation

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Has anyone else here experienced leg paralysis when getting out of bed?

Kattyjones profile image
6 Replies

It's happened to me a couple of times when getting out of bed middle of the night to get a drink I literally drop to the ground and can't move my legs for a couple of minutes. There us no pins and needles associated with it. I was diagnosed with PBC about 3 years ago and recently my bloods have shown a small rise inflammatory markers.

HELP :(

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Kattyjones
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6 Replies
Lisacj profile image
Lisacj

I think you really should go see the gP and push somewhat for a decent answer. I have rheumatoid as well as PBC, and dont get complete paralasis.. very stiff in the mornings yes, and hard to walk around, but it eases after about half an hour. I also get very sore feet by the end of the day, sore skin almost cant rest them on the bed have to keep them raised of the matress with a couple of pillows. Sounds to me something quite different. Do go and have it check :)

Kattyjones profile image
Kattyjones

Thank you my gp doesn't seem to listen I am just looking into finding one who can deal with chronic illness and pain. Last night was a bad one it felt like someone was taking a razor blade to my spine and was travelling right thru to my pelvis I'm so exhausted. :(

Kattyjones profile image
Kattyjones

Ended up in emergency and they worked out that its si joint dysfunction. Thank you again :)

Yes my lower legs are numb on getting out of bed in the mornings. This began last year, and I also lose my balance especially on leaning forwards as my toes have lost a lot of feeling. I have C.R.e.s.t. And PVC. I am afraid you can expect a lot of strange and disconcerting things with these problems. allow yourself time to adjust. I do know how scary your symptom is. Stay with us on this site. the info and support here is invaluable. Wishing you all the best.

Kattyjones profile image
Kattyjones in reply to

Thank you it's nice to know u aren't alone going thu the same things :)

Lol, Ii mean PBC of course.

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