Hi all I am a 44 year old woman who has been living with PBC for 14yrs but only diagnosed 13yrs ago. I am married with two children aged almost 8 ( his birthday this coming Thursday 23rd ) and an 18yr old daughter who is turning 19 in few weeks. I have had the awful itch lot of people with PBC have to a greater and lesser degrees 24 / 7 since 2001 this is the symptom that actually made me go to the Dr. The fatigue and joint pain was also havin I put down to where I was working at the time (care of the elderly hospital ward with capacity for 36 patients and it was usually full to capacity so very busy and I worked full time then doin 12hr shifts ). The only thing ever helped me with the itch and does still to this day was a medication called Questran Light. Doesn't take it away totally but does bring it down to milder tolerable levels. Have not let Pbc rule my life just took my meds attended my liver clinic appointments and got on with life which was the very good advice the consultant who diagnosed me gave to me telling me also that my life expectancy was not shortened because of this diagnosis as he had many people in their 70's and 80's living with PBC. So took this advice. Have completed a diploma a degree had a baby and gotten married all since my diagnosis. Life is for living is my motto.
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