Pbc

[Purdy2017]

Hi does anyone have problems with tummy cramps and coffee had chronic diarrhoea on sat morning cold sweats then went away till monday afternoon after I had coffee and then I was freezing cold with it could I be celiac or could i have celiac disease any advice would be appreciated thank you

[Hidden]

Hi Purdy2017

Cant comment on whither you have celiac or not. I was told at diagnosis it is common for pbc to have celiac. In saying that i dont have issue with coffee .

Take care

Angela x

[Purdy2017 in reply to Hidden]

Hi thank you for your reply I had to have a blood test today see wot that comes back at horrible gripping pains

[kimphoebe]

Hi there, I get tummy problems all the time been tested for ceiliac with bloods and then a colonoscopy but was clear seems it’s probably just ibs. I think personally it’s prob all to do with having pbc. Can’t pin it down to certain foods I eat.

[Purdy2017 in reply to kimphoebe]

Thank you for your reply blood test come back ok but thay did not test for celiac or lactose intolerance so I'm having another blood test done it's a mystery

[Candy12]

Firstly I would say any new or unexplained symptoms should be looked at by your doctors, tummy issues could be so many things. Celiac is another autoimmune disease, it may be useful to get tested. I was tested routinely when I developed similar symptoms however:

Celiac is from the gluten in wheat, rye and barley, or any products with it added like a lot of sauces even some brands of crisps and chocolate contain it. Never heard of it being added to coffee, though it could be the coffee for other reasons.

However do you have very milky coffee it could be the milk. I’ve become lactose intolerant and if I have more than just a little, I get those type of symptoms, but best to speak to your doctors before eliminating anything from your diet. I did a long elimination FODMAP diet with a dietitian before finding out what the cause was. Hope everything goes well.

[Purdy2017]

Thank you for your reply I've had grips in the past when I've had yogurt but mild the other day I was fine had a couple of capituno then the pain started that's why I put it down to the coffee a couple of night before dont no wot that was like I said cold sweats following day ok thought it was gastritis but that would of been ongoing strange bloody pbc

[mrspeffer2]

Hummm...just wondering if there might be cream in that coffee? I use cream in mine....bad vice, but nut milk alternatives just don't do it for me. Anyway, sometimes the combination of coffee with the cream causes tummy problems for me. Just thinking there may be a correlation between dairy and your tummy...Be well

[Purdy2017 in reply to mrspeffer2]

Thank you

[Odieweb]

I had a lot of stomach and intestine problems early on and tried various ways of eating, including the Anthony Williams raw food diets. After trialling various things the most successful I found for me was an autoimmune protocol diet which eliminated all gluten, dairy, sugar, caffeine, alcohol, additives, nuts, most spices, nightshade vegetables. I did this for 3 months and have now added in nuts, occasional nighshades, decaff coffee. I am not going to add in gluten or dairy for a while longer. This is working for me. Your journey will be different. I hope that your tummy feels better soon. With best wishes.

[Purdy2017 in reply to Odieweb]

Thank you for reply yes I hope I can get to the bottom of it it's very tiring people dont seem to understand I was fit and healthy before diagnose now it's a night mare dry eyes dry mouth tired now tummy trouble 🙄