Pbc

[janine541]

Hi everyone

Hope everyone is ok. I went to see my new consultant yesterday as my atl have gone from 40 to 238.

They did blood tests and also a scan and have booked me for another liver biopsy.

Any body been here

[ENuk]

Hi Janine, have you been diagnosed with PBC or still in early stages of diagnosis?

I was diagnosed last year and now on Urso. My situation was slightly different as I went for a routine scan following abnormal blood tests and they suspected cancer so I went for CT, MRI, Nuclear scans and several biopsies followed by a surgical biopsy. All of it was fine, slightly daunting but it's pretty routine for the staff.

Where are you based? Is the consultant a liver specialist?

I have taken great comfort from the PBC info on this site that says for most of us it will be a well managed condition.

Take care

[janine541 in reply to ENuk]

Hi

Ive already had a pbc for 3 years. But sudenly my bliids have risen. They are testing for auto imune hep now.

Ive been reffered to a liver specialist at another hospital

I was under a consultant.

[ENuk in reply to janine541]

Ah, I understand. Have you been referred to one of the main hospitals?

I was being treated locally and then transferred to Royal Free and that had been very reassuring.

Good luck

[janine541 in reply to ENuk]

Yes st james liver hospital x

[Roz49]

Hi Janine I am in the same situation,

I have been newly diagnosed with

PBC and autoimmune disease my ALT levels are 1300 , I went to doctors with stress and had some blood tests and they came back with raised ALT , GGT levels . Back in October, I am now under kings college hospital, Monday I had blood tests and a fibro scan and will have a biopsy at a later dates ,, I am now on Urso and fatigue is getting better, I don’t feel so tired ,

Take care

[janine541 in reply to Roz49]

Oh good luvk ive been on ursal for 2 years. X

[Haking]

Hi don't panic, there are of reasons this could have happened.

1: the lab could have made a mistake, what you had eaten the day before, have you been taking antibiotics, painkillers etc.

I'm sure you'll be fine, my test are like that all the time.

Relax and enjoy life, be positive, mind over matter, people survive with last stages of disease with positive thinking.

Sit down close your eyes, and listen to soft music and imagine your liver and gently wipe off any mark you see.

Have a good weekend.

[Roz49 in reply to Haking]

Thank you it’s been a shock I have suffering from fatigue for months struggling with work, it’s actually relief that there’s a reason I have felt so tired,

Roz😀

[janine541 in reply to Roz49]

I hope you feel less tired soon. My tiredness is their nearly all the time but already on ursal.

Im glad it seems to be working for you

[janine541]

Aww thank you so much. I would like to view how many years people go before transplants and i realise i may never need one .

Thankyou once again you made my day