Hi I was diagnosed with PBC 10 years ago and went from stage 1 to stage 4 (End stage) 4 1/2 years ago. I am on the list for a liver transplant but not sick enough to be a priority at the moment. I battle through most days and try not to let it get me down. Then came this!
On Sunday night after a big day, I helped my husband weed a little bit of the garden then we went out to a tapas bar with friends and listened to an awesome singer then out to dinner before heading to the airport to pick our son up, he had been holidaying in Bali with his girlfriend. We finally got to bed at about 1.30am so I'm unsure if what follows was caused by fatigue or not?
I got up not long after getting to bed to go to the toilet and I had a little black out then I was slurring my words but it was quick and I was back to reading the thermometer so my husband wasn't too concerned. We went to sleep for about an hour and he awoke to me slurring and rambling on, he was yelling my name to wake me up but I want responding. He quickly called the Ambulance and they sent one straight away, first of all came the Mica Paramedic then a regular Ambulance joined him. I have no recollection of any of this they put me in the ambulance and on the way to hospital I could hear them talk but still couldn't form any words about 1 1/2 hours after our arrival at the hospital I felt my head clear and I said I think I can talk again.
This was terrifying especially when I could hear them but not talk.
I saw the Professor at the Liver transplant clinic today and he doesn't think they are related but maybe the stroke I suffered was caused by sticky platelets going to my brain? I now have to go through more testing at the stroke clinic to hopefully find a reason this happened.
They couldn't give me some drug that they normally would in the first 2 hours because of the oesophageal banding I have had and 2 were only 2 weeks ago. He won't even give me asprin.
Does anyone have a similar story?
looking forward to hearing from you.