Has anyone ever had a fibroscan and a swollen spleen

[Arlie]

I’m just starting to have blood counts lower than last month

[gwillistexas]

Arlie, I just had my second fibroscan. Are you about to have one ?

[Arlie in reply to gwillistexas]

No not yet what was your feelings on having this done , how was the procedure and what kind of results does it show

[ninjagirlwebb in reply to Arlie]

Fibroscan is not scary. It is like a sonogram machine. It bounces sound off your liver area to create a sense of how stiff the liver is. There is a scale & chart that interprets the results. Your doctor will explain your results in context of those charts.

I did one earlier this year.

[Arlie in reply to ninjagirlwebb]

Thanks so much 😉

[gwillistexas in reply to Arlie]

Sorry to be so late answering. Just got home from work. My GI prefers fibroscan vs biopsy. He says he gets a better overall liver condition as far as fibrosis. He does it once yearly. Much like an ultrasound, but different in its own way. My first showed mild fibrosis.

[Arlie in reply to gwillistexas]

I never had one , going tomorrow to the dr going to ask her , gwill , i’m coming to see my sister in Oct

[gwillistexas in reply to Arlie]

Arlie...that’s wonderful! I work but maybe if you’re at your sisters on the weekend, we might try to meet up. Just let me know😊

[Arlie in reply to gwillistexas]

I sure will 😄

[gwillistexas in reply to Arlie]

👍🤗

[Arlie in reply to gwillistexas]

😄

[IAmTheGlue]

I did! I have PBC PSC overlap. My spleen in enlarged and by the MRI my liver is "morphologically cirrhotic" but my fibroscan was well in the normal range. 🤔. Like perfectly normal.... Go figure that one out...

They diagnosed me as "early cirrhosis" in April. I'm due for another round of imaging in 2 weeks. Very anxious to see how I'm looking now.

You will be okay. It's an easy test. 👍🏻

[Arlie in reply to IAmTheGlue]

Thanks, how long do u have PBC, what meds do u take

[IAmTheGlue in reply to Arlie]

I was misdaignosed as PBC/ AIH overlap less than a year ago "pre-clinical" about 11 months now. I started Urso and Prednisone then. I do not have the AIH part of the diagnosis so I was started on Prednisone for no reason. 😡

I have not been tapered off the Prednisone yet so I still take it and Urso. My labs have improved, my alkaline phosphate was over 1200 last year this time & it's just under 300 now.

About 2 weeks until I go back. I'm hoping for good news. 🤞🏻

[Biddyb in reply to IAmTheGlue]

Why are you still taking Prednisone you should be weaning off it what does your consultant say re this. I too was mid diagnosed with the overlap and my new consultant go me to wean off the steroid straight away.

[Biddyb in reply to Biddyb]

Sorry bad typo I am on a coach and didn't check my message. But you get the idea.