PBC Foundation

medical alert bracelet

hi - I've been considering purchasing a Medical Alert Bracelet. I have PBC and AI Hepatitis - but also listing my medications (mainly concerned about the Prednisone).

When I was in emerg last month for what I thought was a heart attack - they nurse almost gave me aspirin. I questioned her as to whether or not I could have aspirin (with my conditions and the meds I'm taking). She had no idea (in fact didn't know anything about PBC). But turns out I couldn't have it because of the Prednisone. Turns out it also wasn't a heart attack - but those are things that I worry about in terms of if I'm unconscious, I want the medial personnel to know these things (my conditions and my meds)

anyone else wear one?

8 Replies

Hi, I wear an SOS talisman necklace. I have information about my transplant, medication and the fact I am diabetic. Also the usual stuff my name , blood group, a contact number, infact it's a good idea to wear one.


Sounds like a really good idea... It's been bothering me for a while that if I couldn't talk if I had a varicella bleed the ambulance. Or hospital might not realise quickly enough or if I had an unrelated accident not to do with the pbc.

Did you get. It on the Internet.?

Best wishes. Cazer. X

1 like

I'm going to order one


where are you going to get it from please?


Thanks I've been leaning toward getting one


What stage are you at if you don't mind me asking?

I'm pbc. Hoping to get. assessed soon.

Guess your wide awake as well?

Best. Wishes cazer


HI - I'm nearing stage 2. Not sure what stage of Autoimmune Hepatitis I'm in - she didn't tell me although it was found on a liver biopsy so I'm sure they could stage it.


I've never considered anything like this Becca75 and I've been diagnosed with PBC now for just over 6 years. I only take the urso though. (My bloods are not normal range.)

I'm no medic but I am aware of prednisone (or prednisolone) and aspirin as both are of an anti-inflammatory on the system.

I think it depends on you personally with regards to wanting to wear a bracelet. My son-in-law was diagnosed as a diabetic when he was 14 so he's been on insulin daily. His daughter (my granddaughter of course) developed diabetes when she was 2. She is 7 now and both her and her dad wear a bracelet as the condition can become life-threatening quickly. This probably gives myself a good reason not to consider one of these bracelets. I know myself if I was not to take the urso one day it wouldn't have a big effect (one reason why I think the urso isn't even considered as a free med on the NHS here in England like insulin).


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