Anyone feel dizzy?

[Sweetness_1]

Hello Everyone.

I have recently started to feel dizzy when I lay down and then at times when I get up from laying down.

Has anyone else experienced this ? any relation to having PBC early stages of cirrhisid?

Thanks Jackie fr Calgsry, AB Canads

[butterflyEi]

Hi Sweetness_1

I used to get dizzy heads especially when turning over in bed. Some other symptoms came later before I was diagnosed with pernicious anaemia and a B12 deficiency. I have been on B12 shots this year and have not had any dizziness. Maybe worth getting your levels checked. B12 deficiency can happen without having pernicious anaemia. I understand from what I have read that certain medication such as long term use of Omeprazole can reduce the body's ability to convert B12 from our usual food sources or if you are vegan then sources of B12 are limited.

Best wishes

[Sweetness_1 in reply to butterflyEi]

Thanks for the reply

[Hidden]

There are so many causes of dizziness I can't remember the times I have disagreed with my GP on that very subject but I read somewhere (US PBCers site I think) that dizziness in itself is not a symptom of pbc. but postural hypotension can be. I don't know the reliability of the information but hypotension (low blood pressure) can cause some lightheadedness on changing position if your prone to it. So It may be worth getting it checked.

[Sweetness_1 in reply to Hidden]

Thanks for tge reply

[PCBnPBC]

Hi Sweetness,

I am now 2 years after liver TX (but still have PBC of course, but the worst of the PBC problems are behind and in front of me)

Prof Jones of Freeman Newcastle UK is an eminent PBC researcher and transplant guru, a world leader in PBC.

I used to suffer your complaint (amongst others!!) dizziness, one day I had all the symptoms of a stroke, face dropped, speech slurred, everyone including the paramedics and hospital thought it was a stroke, I went to Prof Jones for tests (250 miles away) , many tests, then more tests, he was satisfied I had not had a stroke......he explained, there is a "sensor" (I am from electronics, hence PBC and Printed Circuit Board PCB andI think in these terms) in our necks (all humans, not just PBC people!) this senspr in crude terms senses fall in blood pressure and does 2 things, closes the veins and arteries (like a fast jet pilot suit does under heavy G forces) and speeds up the pump (heart) to increase pressure ......in PBC patients he has noticed an intermittent failure of this sensor (or the "wires" that connect it to the system).

He was so sure of this (in my case) that he was happy to go on with the transplant that I so urgently needed some months later. (Stroke patients would not routinley be eligable for a liver TX)

I add my case is not neccessarily the same as your case!!

I further add that Prof Jones is really right up there in PBC research, and is one of the most up to the minute informed consultants world wide on the narrow subject of PBC. (or to put this on its face, many other consultants may not be up to speed on this subject)

Hope this helps, rather than confuses!

Charlie

[Wilmahair in reply to PCBnPBC]

That was a really interesting read. Thank you for the very thought out explanation. Now if only Dr's would do the same so we could all understand instead of all their Dr language. Thank you. You would be a handy person to take to a consult. Lol.

[Sweetness_1 in reply to PCBnPBC]

Thanks Charlie I appreciate the insight.

[Sweetness_1 in reply to PCBnPBC]

Thanks Charlie, great insight

[Kate50]

Hi, I used to get this and was told it was caused by low blood pressure that was caused by liver disease, x

[Jlruggie]

Yes I felt dizzy, off balance and metallic taste in mouth. I started yoga classes daily, some balletone, lifting weights and mountain biking, feel great now. No symptoms except occasional fatigue and mild occasional itching that is cured with a nap, hot baths, Epsom salts and oils in bath water. Hair texture is fuller with grey hair. Exercise, drink only 16 oz alcohol spread out over the week, no sugar. Dizziness may subside.