Hi a!l, just thought I'd give you all an update on my progress, firstly I am feeling really good had all my staples out now so the area is less tender. I had my second clinic appointment yesterday and liver and kidney function in Drs words are perfect.
No itch is the biggest thing to get my head around, its amazing but still worried every time I get the slightest odd feeling but then realise its just a tickle which is normal but still hesitate to scratch in case I start something off!. I guess after itching for over 10 years it will take some getting used to.
Had a bit of a blip last weekend, spent Fri till Sunday in hospital, I had a terrible headache that just wouldn't go, anyway to cut a long story short it was found my white blood cell count was high so immunosuppressants were changed steroids were upped and I am now back on the road to recovery. I am walking better and further each day with little discomfort, you've just got to read your own body and realise that you do get tired really quickly and not to overdo it.
I hope you are all keeping as well as you can be.