Sorry for the long post. First I want to point out that I have diabetes type 1, diagnosed October 2005.
I have had pain in my ankles on and off for a few years but this year the flare ups have been very bad with pain occasionally in my wrist. So I paid privately to see a rheumatologist in August and he sent me for blood tests. When I went for my follow up he said that I tested negative for rheumatoid arthritis and said he would arrange a scan on the NHS.
Then around 8 weeks ago I started having seizures, fully conscious just starting into space and with body jerks. I'm also convinced that excercise brought these on. Again I paid privately to see a neurologist and an MRI and an EEG. MRI was clear and the EEG had some abnormal brain activity but not indicative of epilepsy and so he said that ithey were probably Non epileptic seizures called dissacotive seizures to do with the nervous system. So, I'm now waiting for a sleep deprived EEG.
Then last Friday I had a letter from my rheumatologist regarding the bloods I had done in August which said ' your bloods have come back showing an antibody against mitrochondia which can be associated with arthritic pain and also some liver complaints all though your liver bloods are normal at the moment'. I was shocked that this had took him so long to send out so I managed to get in touch with hike and he said that it is probably nothing to worry about but he said he would arrange a liver scan as a precaution . So, I am paying privately for one on Thursday 18th Dec and hopefully I will have the results on the day.
So, I have had a read and obviously I am aware that antibodies against mitrochondia could be an indicator of PBC, so I'm out of my mind with worry going to this scan! The consultant did say that the levels were low and that I tested negative for smooth muscle antibodies (think that's whT it's called).
I know I only have to wait 2 days for my scan but I'm so worried as I have 3 children and I am thinking the worse.
Is there any chance that I could test positive for these antibodies and nothing could come of it?
Any help and/or advice would be very much appreciated