How many of you with pbc have benefits ? - PBC Foundation

PBC Foundation

9,465 members8,260 posts

How many of you with pbc have benefits ?

cowre profile image
8 Replies

I have had pbc since 2010 also diagnosed with Chronic Fatigue Syndrome and possible Fibromyalgia along with Gord .. I've cut my working hours now since last October but fo not feel any benefit and haven't got a clue of where to start if I give up anymore hours I won't be able to afford the car I need to get to work ! Should be sleeping now as I have work tomorrow but brain won't shut off ! Any advice will be gratefully received by the way I will be 54 at end of month :)

Written by
cowre profile image
cowre
To view profiles and participate in discussions please or .
8 Replies

Hi, like you am in my early 50s and was struggling at work. I have PBC and was diagnosed 7 years ago. I was "pensioned off" by NHS in Scotland and went to Citizens Advice Bureau who were extremely helpful and got me the benefits I was entitled to. I have now been retired for over a year and it does make a difference.

janey_babs profile image
janey_babs

I think the pbc foundation can help you claim for benefits.

cowre profile image
cowre in reply to janey_babs

Thanks Janey_baby I will give them a ring x

Tessa profile image
Tessa

Hi. I was sacked for my sickness absence record. I claimed ESA and DLA. I also took my employer to tribunal for disability discrimination - they settled out of court.

spoul profile image
spoul

I had to take ill health retirement from the nhs. I'm same age as you so is this a possibility in your line of work. Contact me if you want more details. Take care x

kim59 profile image
kim59

I am 55 next month and had to finish working in 2001 / 2 and yes had to claim benifits happy to help if i can feel free to contact me

Perkywerky76 profile image
Perkywerky76

You need to call ESA and DLA or what's replaced it and say your too unwell to work and see what you can claim. You need to state how bad you are on your really bad days else they won't help you. You need to get doctors or consultant notes and gather as much info as poss and a letter from either will also help too .

Hope that helps - look on line to get the phone numbers xx

cowre profile image
cowre in reply to Perkywerky76

Thanks perkywerky I think I will go to citizen advice in my nxt week of the problem with my gastro consultant he keeps saying I'm not displaying any symptoms do I will needto convince him first I will take you up on the offer thou x Karen

Not what you're looking for?

You may also like...

How many if you have PBC and Fibro

Just wondering how many people have both ? As I have said b4 Dr said I havent got it and then says...

Finding work with PBC

Hi I was diagnosed with PBC a couple of years ago and have only recently been directed here via...

To people who have been transplanted due to PBC how long were you diagnosed with PBC when you needed a transplant?

Also do you think( when you now think of all the symptoms you can have with PBC) if you actually...

Diagnosed today with PBC

I was diagnosed with pbc today, they have caught it early by chance. As went to doc for something...

fatigue with PBC

hi everyone I was diagnosed with PBC over a year ago. The tiredness is awful. I can’t seem to...