I went to my gastro last Monday with positive thoughts that my healthy eating plan and the Ursofalk would have had some positive impact, BUT bilirubin had gone from 45 to 76, ALP from 752 to 768, AST from 96 to 622, and ALT from 182 to 1179. Albumin was constant 38 and the GGT had gone down from 895 to 425. He said to remain optimistic but that is difficult when you look at these results. I feel OK, only a bit tired at night.....or is this the nature of PBC? Creeping slowly up on you!
Anyway, he has decided to put me on 10mg of Methotrexate. I take it once a week and then have to take Megafol (folate) for the other 6 days. So far I still feel normal with no side effects. You have to put sunscreen on and stay out of the sun. OK in the Aussie winter, but don't know how I will go when summer hits. I love the beach. Has anyone else been on Methotrexate? It is meant to suppress the immune system.
Have another appointment on July 1st and I am continuing to take the Ursofalk, 2 morning and 3 at night. All you can do is wait and see I suppose........
Skippy (still hopping along)