I have severe M.E. along with a few other things, but was diagnosed with B12 deficiency in 2007. Was given loading doses and one more shot after 3 months, then told it was a 'one off' that my b12 level was 76. Nearly a year later my new GP tested my B12 again and my levels were around 160. So went on loading doses again and then shots every three months. My B12 specialist trialled me on B12 shots every week for 6 months but it made no difference to my overall health sadly My gp has agreed to give me a shot every month instead of every three months now but I wonder if there are any other supplements I should be taking, I was low in vit d so take 2000iu of that, my iron wasn't particularly low, and my red cell folate was tested ages ago which appeared normal too? I've also somehow missed 5 months of any shots as the nurses forgot (and so did I.. don't ask how..) but my GP says I don't need loading doses again as my levels would still be high, is this true? I've had terrible chest pains, shortness of breath and dizziness severe again so I'm wondering if it's cos I've not had my B12 (just had it today thankfully..) and of course my exhaustion is severe, I am 99% bedbound apart from when I need to try and get to the bathroom... any help would be MUCH appreciated.
I have also had a couple of tests for PA but no antibodies showed, and we've never actually got to the bottom of why I'm B12 deficient...? Coeliac blood test was negative although I know that isn't accurate and my coeliac biopsy was normal years ago too.
Apologies for the long essay, I hope it's made some sense lol.