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B12 deficiency and H pylori bacteria

mertunal profile image
6 Replies

Hello everyone, I went to the hospital with complaints like vomiting continuously about 6 years ago, giving 10 kg per week. Results gastritis, ulcer, reflux after endoscopy. After that I started to suffer constant muscle strain. I can not stand on foot I can not exercise and it's over-affecting my daily life. My muscles extremely weak. I started forgetting something during in day. Neurologically, I went to 3-4 doctors. emg, mr nothing, everything was in order. And I have low vitamin B12 about 100. I used B12 injection and I did not see any benefit for two year. New endoscopy resulted in Chronic Gastritis output and helicobacter pylori ++ / +++ level.

What I am wondering is, could this six years B12 deficiency does a permanent neurological damage? And how can I test this?

I am starting h. pylori treatment today. How long should be gone this muscle weakness? Anybody experienced this? Thank you so much for your replies.

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mertunal
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6 Replies
4101 profile image
4101

So sorry you're having such a difficult time. Others with more experience than I can help you with that question about permanent damage. I do need to know how frequently you were taking B12 injections, and were you taking folic acid and vitamin D as well? It's very possible that you would feel better if you were taking injections more frequently and if you were taking the other supplements that I just mentioned. Also what was your iron level. And were you taking anything for that?. I am new at this but I think the above questions need to be answered so that more experienced people will be able to help you.

mertunal profile image
mertunal in reply to 4101

Thank you for your reply and support. I used my injections first once a day (5 times), then once a week (5 times), then once a month (I don't remember how many times). In the tests, my vit D and folic asid were normal. CK, CP are normal levels also. I use mixed vitamins sometimes, but didn't benefit any of this about muscles. Like I said in blood tests everything was normal except B12. Thank you for your support again. I hope more people reply for this.

4101 profile image
4101 in reply to mertunal

I think that it might be too soon to think about permanent neurological damage because there are still some other options available to you. First let's see how the H pylori works. Did the B12 shots help at any point? Did you feel as if you were ready for another shot before it was schedule?

KimberinUS profile image
KimberinUS

I had h pylori. It had taken my b12 but mysteriously my ferritin stores were at 70 so i felt those were fine. I was wrong. People with Chronic inflamation need a level of at least 100.

dermnetnz.org/topics/iron-d...

Two months after treatment of H pylori and I still felt poorly. I was getting b12 injections and supplimenting everything i could think of, a multi-vitamin with plenty of folate, B6... all the b vitamins really, magnesium, vitamin C, potassium, zinc. My D was fine. It wasnt until in desperation, due to continued lack of energy brain fog and weakness, that I started to supplement with iron, as everyone tells you to be careful with iron because too much is bad for you.

I felt better almost immediately. However, as i said, this was two months after I had been treated for h pylori.

I hope you feel better faster than i did.

Best of luck.

Milley2 profile image
Milley2 in reply to KimberinUS

Did your Gp prescribe iron

And what was your iron level

JAMV profile image
JAMV

Hi mertunal! How did the treatment go? Hope you are fully recovered now.

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