PA help gastritis ?

[Milley2]

I don’t know if I have PA

I went low b12 in March at 124

Had b12 loading

Fir a month

And folic acid as that went low to

I also had h pylori

That’s gone now through triple therapy meds

And that left me mild gastritis

I’ve been awFull

Gp gave me ppi meds I suffered on them a lot

So had to stop I was given as went i. Hospital 4 times

With severe nauseau and heaving

I research and from what I read it says PA

Can have also gastric issues

Mine wakes me in night

The hospital now have given me gaviston?

I’m wondering if this correct as

Doesn’t PA give and h pylori lower tummy acid levels ?

So taking ppi or gaviston has worsened me

A lot especially to be in hospital

So I’m confused upset very poorly indeed

I now self inject but my Gp wants me to stop as she said it’s prob the b12 to much alternate days

Doing the damage ?

I’m thinking if I do have PA then surely my tummy needs acid in it ? So ppi has taken that away now snd gaviston ?

What do or should I do

I’m getting know where with hospital etc snd apps

No clear picture

My h Pylori has gone now

I’m suffering a lot here

I’ve constant burning ears and ringing which I think the ppi meds made worse

I do not know whether to take folic acid along side my b12 or to stop b12

Or what to do

I didn’t inject fir 4 days the ears are burning inside a lot with vibrations in there humming

Thy pumped gaviston in me earlier I feel dreadfull ear pressure is bad very bad

I’m at my wits end here wanting to die literally

I’m thinking my tummy acid is low rather than high ?

Hospital said mild gastritis so I need to reduce the acid ?

They know I went b12 def but say it’s corrected now

They say I’m ok

They said to continue the gaviston ?

I feel worse

And feel like I’m doing b12 which I know won’t heal gastritis but is it been made worse by taking

Anti acids ?

Help thoughts please ?

[Nackapan]

I'm sorry you so poorly. And feeling so desperate.

I've no answers as know little about gastritis. .

If hi-pylori treated by a cocktail of antibiotics that alone will make you feel ill and will take time to recover.

Its possible if that was the cause of your b12 deficiency you may absorb b12 again in the future.

B12 treatment is not causing you any harm .

Dont take more than 400mcg of folic acid daily unless prescribed .

Have you tried pribiotics?

Get back to your gastro specialist for advice . Discuss with tour Gp too.

Try something acidic with ylur e food like cider vinegar

I'm sorry I cant be if more Help

Others have more experience with gastric issues and hopefully will see your post soon.

T c

[Milley2 in reply to Nackapan]

I’m also hoping to taper the b12 down once I feel better to know when to taper is another thing

As I’d like to think I can absorb from food source still

Early days

Bern through a lot with this

B12 hpylori gastritis

All at once

So no wonder I feel dread full

Can’t imagine how dreadfull but trying to remain

Positive to heal x

[Nackapan in reply to Milley2]

Yrs I would keep up the b12 while you are healing . Small steps at a time .

I'm hindsight I think I shouldve stayed on weekly injections but as i managed to get 2 weekly from my doctor stuck with that for a year. Who knows?

Frequency takes so long to work out . It will take you time to work out what you need and how administered. Even if slow I hope your start moving g in the right direction. T C

[Milley2 in reply to Nackapan]

Do you not self inject ? Once a fortnight is goid from your Gp mines monthly there

[Nackapan in reply to Milley2]

Yes. Wasnt easy to get . I just kept pushing. Tried other things she suggested so she knew it is b12 I need . She had plenty of opposition from peer Gps. A letter from neuroloy helped. Didnt stayed 2 weekly but ' frequent' and condoned Sc in the current climate off llicience.

I alsi bought some with help on here. So every 6th day at present.

[Milley2 in reply to Nackapan]

And you still have symtoms towards that 6th day ?

What was the cause of your low b12

[Nackapan in reply to Milley2]

I have symptoms every day. Much improved over 2 years. I've not had a clear picture with frequency. All o know is it keeps the worst symptoms away. I was on every other day for months . Weekly then 2 weekly now every 6th day. I do not change things quickly as I want to have some idea what happening. Same with supplements and attempts at exercises!

[Nackapan in reply to Milley2]

I dont actually have a diagnosis of cause .

One doctor said most likely PA

Another dietary (its not)

Another menopause hormonal changes the trigger.

My diet kept me healthy before si it's not diet. I cant absorb any form of b12 in food or tablets or sublinguals ect. Or if I can it not enough for my body. I also think once on injections it's hard to reverse. Although one friend went vegan . Got some vague symptoms low b12 caught in time had b12 injections . Changed her diet. Ha s had no more injections since March and is well. She is very fortunate to have a good Gp who acted so quickly. Hers was obviously dietary and caught in time. She sid she felt no difference from injections. She was seen sent for an endoscopy as a pain in her side . Al clear and symptom free now.

[Milley2 in reply to Nackapan]

So I had h pylori which has gone now

Tummy is only mild gastritis so I’m hoping eventually I can absorb again

My diet included meat etc veg I was fine before

My intrinsic factor is neg and parental cell is neg hinting towards

The b12 def only sling with the gastric issue it caused so I’m praying eventually

I’ll be normal

Fir Me

I have been to inconsistent with b12

Then taking folic avid

Then ppi meds

Then going round in circles

I now have to listen to mysrkf

And try at least to inject

3 times a week

I tryed dsily but was so sick

So I’m going to persevere with 3 times a week goid diet

Potassium foods

Folate foods etc

Oats honey meat veg avacado Brisbane’s bread

Fruit

Water

Smoothies homemade

Live yogurts etc to try and heal

My folate is within range

Potassium

Vit d

Thyroid

All other bloods are normal

2 years is long

But I hear it can take that long

What was your level of b12 in beginning ?

[Milley2 in reply to Nackapan]

I have probitics but not taken yet as bit reluctant as my tummy has gone through so much since June thus year and that can also give some side effects to

So diet at mo foods etc

I can only try

[Milley2 in reply to Nackapan]

I think it’s confusing to that they can’t say for sure if it’s PA my consultant said the same

He said most likely but that does not help does it

[Milley2 in reply to Nackapan]

I find g p do not know to much about all this and send you on your way saying your ok

And you have enough b12

Which in my case is dangerous

I was in emergency dep yest lying on the floor

After being examined and shoving gavistin done me

Got back don’t know how I drove

And collapsed again

Did a b12 after 4 days of not having

And am 40% better today

I just need not to panic like now have a lot of symtoms then I used to think I need to inject again

To soon

As then I felt so sick

I believe it takes 24 to 72 hours to start working in body

So I need to not panic

And stick to every 3rd day despite symtoms

Which as you know are vile

[Milley2 in reply to Nackapan]

Like now I’m a bit shaky

Tummy feels odd slight neck pain I can only hope it’s healing feelings

And not worsening

I’ve been so poorly so long

It’s like yin can feel it working but also

Giving different symtoms along side

Healing ? I just do not know

I’m hoping it is

I hate injecting it just feels not right

I feel it’s keeping me alive which I hate this thought

Without it it’s my only hope as Gp don’t believe I need more

So

I’d prob be dead

If after 4 days I’m critical on the floor can you imagine a month what I’m like

Which I’ve never got to a month like my Gp wants me to

I do try

But then virtually collapse and end up in Hodpital being drugged up

Making the situation much Worse

On ppi etc

Which I’m off now

They caused me much issues to

[Nackapan in reply to Milley2]

Just try and stay positive you can get improvements . Take each dat at a time.

[Bebygirl]

I’ve had many of these same issues as you were having, most if not all doctors these days, waste money and time with not only diagnosis, but with tests. I found immediate relief from many symptoms by going “gluten free”, I still have to take supplements and pain medication as I’ve only been gluten free for 6 weeks. I am curious is you also have a rash anywhere on your body? My rule of thumb is don’t eat anything God didn’t make naturally first (organic and fresh) and then don’t eat anything you yourself didn’t make. The food industry makes many good changes as far as foods looking prettier and tasting great, but nutritionally we are being starved of vital nutrients and many foods are contaminated with known allergens. I take Calcium (antacids), Vit D, B12, Folate, Magnesium each day, twice a day, in high amounts. Again, I expect all this to change once my body heals and the allergens leave, but until then, I am continuing what is working. I am finally able to have normal stools, less back pain, no ear pain and hearing issues, my rash is healing on my shins (still have eczema on my scalp), and my muscles don’t hurt as much, I don’t have acid reflux from any food including hot peppers. I have had each and every one of your symptoms. You don’t need a diagnosis to correct your body issues, doctors are mostly ignorant about it anyways. If you wish, spend your money on a nutritionist and go from there. If you try this, please keep us informed of your progress.

[Milley2 in reply to Bebygirl]

Gluten free as in

What can I eat ?

I’m having fresh veg potatoes smoothies I make

I’m taking b12 again 3 times a week

And stopped the ppi meds as was vile the h pylori had gone now so trying to heal tummy mild gastritis naturally as shown from endoscopy

It’s only mild

But ppi was worsening my tummy taking all the acid away

And out tummy’s need a certain amount

I stopped the folic avid to as outing thst in caused my tummy to over produce acid to

Can’t win

So foods I’ve increased folate spinage smoothie avacado etc yogurt live mixed in with some ginger to oats

Oats snd hiney breakfast as well

Increased my potassium daily as well

I did a b12 today

After 4 days of not having any

I dipped within those 4 days a lot

All my symtoms came back

Nauseau weakness throat isdue could not swallow

Prickly skin hands legs could hardly walk without feeling to collapse

So that told me as it’s now 18 hours since that b12

That

I can now swallow less belly ache less ear hiss rumbeling

Weakness legs is much better

And have been toilet stools 3 times this early hours

So clearly I’m short on b12 still so will continue

Until these these issues start to subside

Gp pulled off b12 and ssid stop as you have to much

Clearly not as I did it yesterday 18 hours later I’m getting better

Although levels show high or will on a blood test

I clearly need the b12

I don’t know if ppi meds had depleted somewhat what I had but they truly made my tummy worse

So tryin to heal the mild gastritis naturally

H pylori can leave you with gastritis and b12 defiency

So I’m trying so hard to work it all out

So for now I’m continuing against my Gp of b12

In the hope that some of this subsides

3 x a week

With a good diet and no folic acid as that reslly does aggitate my tummy

And since there gastritis there to much acid will irritate the sores mire

So this is as much as I can do right now to try and heal naturally

With the b12

I do have anti sickness tablets to if I need

But I think

The b12 defiency

And the gastritis mild

Will take time and effort to heal

B12 to heal the defiency

And all the good foods potassium foods to try and resolve the gastric issue that was left probetbly by the h pylori and the ppi meds used

Gastritis snd the b12 issues are similar

Symtoms

Nauseaus both

Weak Both

Ears hiss b12 most likely

Belly ache both

Ear rumbeling prob b12

Confusion prob b12

Burning legs prickles prob b12

After injecting Friday 18 hours ago

I’m now less weak I’m able to swallow my ear noise is less the nauseau is less prickles are less

I can walk without feeling my legs will buckle

So I can only assume most of this is down to b12 isdue

When my Gp ssid no impossible you have enough in your body

My level was really low at 124 prob depleted by having h pylori and gastric issues

So only a certain amount as I understand it

From a b12 injection goes in the rest is excreted through urine

So this is going to take some time I think

I really feel I’m back to square one after loading doses in July thus year

That’s only 14 weeks ago

It as I understand can take a while to get levels correct and body tummy working again properly

My intrinsic factor was negative

Parencial cell normal

So I’m hoping once the b12 is corrected and gastritis isdue resolved that I’m still able to absorb b12 from food source

Of course I’m still prob low due to only being out 14 weeks and being in hospital on drops drugs ppi meds had done me no favours

With constant consultants telling me my b12 is ok

It read 1566

That’s because of supplements injections

Does not mean all of it is useable

They blankly looked at me

As if I was mad

I do clearly need the b12 that’s my conclusion

As only injecting 18 hours ago

For me to feel 40% better tells me I’m no where near recovered yet

With a low level of 124 was very low

Assuming this takes time

Xx

[Nackapan in reply to Milley2]

Keep going with your b12. Its clear to need it.

Fodmap might help you discover what foods are best for you. A probiotic might help. Live natural yoghurt or almond or soya ??

Get your bloods done at tegukat intervals to rule out anything else and to evaluate supplements you may need. (You )do not need b12 testing )

Vit d, folate. iron panel . Thyroid whatever you can get.

Yes a long time unless you lucky or csn work it out. Rollercoaster. T C

[Ronsville2 in reply to Milley2]

Have you had a b12 active Blood test ?

[Milley2 in reply to Ronsville2]

They just do normal one and say it’s high at 1577

What’s active one ? The difference ?

[Milley2 in reply to Ronsville2]

I thought it was just one blood test

That showed high because of injections ?

[Milley2 in reply to Ronsville2]

Is there a different one then to show this

I thought it could not be measured once on treatment ?