Just out of interest. Has anyone else got Creeping Fat around their intestines ? ? ? 😱

[Jillymo]

People that know me on the forum will know it's been a long wait to be screened by a gastologist. After a Gastroscopy and Colonoscopy plus an MRI Crohns disease is suspected. A large part of my colon was seen to be inflamed especially around my illium which now explains my B12 deficiency !

I had never heard of Creeping Fat 'sounds like something out of a horror movie' but apparently we all have this fat which can attach its self to the colon if inflamed. It's the layer of fat between muscles and our organs.......... pmc.ncbi.nlm.nih.gov/articl...

I thought other's might find this of interest. Consultant is going to trial me on a 6 wks course of steriods for Crohns. If no improvement then he is going to take me in overnight and carry out a Capsule Swallow.

As if I havn't enough fat without having Creeping Fat as well. 🤔

Maybe I am turning into a Telly Tubby ! Some would say I have always been a bit Dipsy.

[wedgewood]

Oh Jillymo , you’ve quite enough to put up with already . It’s good to have an explanation, and I hope that the treatment works for you . Very best wishes

[Jillymo in reply to wedgewood]

HI wedgewood,

It is nice to know as to why I am deficient but it has made no difference to the amount of B12 prescribed ! There is no surprise there.

The treatment should help with the inflammation but apparently does not resolve the Creeping Fat ! Hey, maybe I am in need of liposuction. 😂

When I thought things couldn't get any worse, I suffered really bad vertigo ! I have an appointment tomorrow to see if I have Menieres Disease. What ever it is it's worse than the Creeping Fat and I can quite happily live without it. I have got to go to the Balance Clinic on the 10th of March for further screening.

I sure know how to live life to the full. 😘

[wedgewood in reply to Jillymo]

I just hope that all goes well for you Jillymo. You have such resilience , but it takes its toll . 💐💐💐

[Nackapan in reply to Jillymo]

As you know I've been left with a vestibular disturbance. My mum has meniers disease . Also had bad vertigo Her drugs for this help.

In fact although a big price to pay since becoming very deaf hef balance is so much better.

I had vestibular physiotherapy.

One lot got me walking again I paid for.

Tried another pysii for migraines inbetween.

Expensive and got a migraine!!

A yesr later i had pressure tests on my ears at the hospital.

After a terrible e consultation from ENT

Odd not seen . He was very abrupt.

I was 'prescribed ' ( as asked ) a 6 week course of pysio . I saw the same woman.

Very helpful.

Difficult as made me so nauseous and if did too much gave headaches.

But very very helpful in every day life .

Retraining how to move

So i wish you well with that clinic appointment.

And I hope you get some help

[pitney in reply to Jillymo]

i'm afraid my fats had a creep all around me😬😂I wish you all the very best with your further tests Jillymo at least you seem to be getting somewhere at the moment, lots of luck👍👍

[Jillymo in reply to pitney]

I thought the consultant was being sarcastic and nearly took him down a peg or two. Luckily he explained this fat else I would have tore into him. It's my tummy, it feels sort of spongy. Looks like I am going to have to wear my Bridget Jones knickers, my Twiggy days have passed my by. 🩲 😂

[pitney in reply to Jillymo]

Mine too 😂😂good luck👍

[PlatypusProfit8077]

the gastroenterologist sounds quite proactive which is good! If it is Crohns, it would explain a lot too.

I hope you’re doing ok with those two sets of news/possibilities. As if you didn’t already have enough on your plate!

[Jillymo in reply to PlatypusProfit8077]

The gastrologist has been rather long winded to say the least. Apparently the creeping far is characteristic of Crohns. I thought he was being judgemental when he mentioned creeping fat l nearly blurted out ' have you looked at yourself recently' but he went on to explain it's a different sort of fat.

I can live with the creepy fat bit the vertigo spinning is very difficult to contend with. How I havn't fallen is beyond me. Lets hope tomorrow sheds some light but I think it will all depend on the balance clinic for the outcome. The Crohns as more or less been diagnosed. My eldest brother has suffered with it for many years so it runs in the family.

I am almost beginning to feel sorry for myself here. Its a good job I have a sense of humour. 😂

What will be will be - Que Sera Sera 🎶 🎵

[PlatypusProfit8077 in reply to Jillymo]

One of my year 11 girls at work has Crohns. She’s had a really rough go of it.

A sense of humour (dark or otherwise) is definitely needed with chronic illness! You have to laugh, otherwise you’d just cry. Although, my counsellor has frequently given me homework of “have a good cry” and it does actually help quite a bit 🤷🏻‍♀️

[Nackapan in reply to Jillymo]

It's amazing you haven't fallen.Well done 👏

I'd often find mum on the floor when she was alot younger.

Had bowls everywhere as vomited as well.

She was in her 70s .

Stress made it 10 times worse after her husband died .

Medication dies work az dies tge Cawthorn exercises.

Keep your sense if humour to get through .

[Jillymo in reply to Nackapan]

I had a fall in the bathroom a while back but luckily have homeline so pushed my buzzer, this recent bout has been vicious. Please dont mention the bucket, in my case it was the reycle food bin. OMG, all I could do was lay on the bed with the reycle, I new the wretched thing would come in handy. I was hanging on to anything and everything that I could. It's horrid and very frightening when it strikes. The thought of your dear mum having to lay where she had fallen is awful. Bless here old heart.

[Hectorsmum2]

Jillymo. Have you had yourself checked out by the thyroid forum. weight gain and vertigo could be thyroid.

[Jillymo in reply to Hectorsmum2]

I have Hypoparathyroidism and Hypothyrodism for many years , in fact the thyroid forum wa s the first that I joined. I am medication for both, conditions.

This is not weight gain as one would think. It is a different sort of fat that attaches itself to the intestines commonly seen in Crohns patients. It's not something I had heard of before .

I have had ear issues since a child and only have one good ear. They think it might be that ear causing the problem ( Minieres ) is suspected.

We all have a cross to carry but mine seems to be getting very heavy.

[Nackapan]

Oh goodness. What s horrible description.

My sister had ulcerative colitis when on her 20s .

Inflammation and inflammation around this I remember being mentioned.

She had several rounds of steroids.

They gave her relief but every time weaned off symptoms returned .

She turned to homeopathic medicine for long term relief and symptom control.

Also a a complete change in diet .

I would've rememberd that term though !

Something else to Google .

Hooe the steroids give you relief and dissipate the inflammation and creeping fat.

Take care

[Jillymo]

Creeping fat doesn't sound good, but that is exactly how the consultant described it. My brother has Crohns ( he is as thin as a rake ) but I have never heard him mention Creeping Fat. If you Google it there is a picture of it where the fat has attached to the intestines. 😱

My friend had Colitis ( another nasty one, ) He managed to cure it by soaking split golden linseeds and drinking them, the other was slippery elm. He hasn't had any flare ups since !

I have been given a six week course of steriods which I am still waiting for. Consultant letters seem to take forever to reach our Gps these days.

Fingers crossed they help. 🤞

[Myoldcat]

You're right that it sounds like something from a horror movie Jillymo! But glad you can see the funny side. Is it what's sometimes called visceral fat? That seems generally less...creepy. Sounds as though you are getting some answers at last though. Hope the dizziness resolves too 🤞🤞🤞

[Jillymo]

From what I have read that is exactly what it is, visceral fat. Maybe I am harbouring an alien. 👽 🤣

The consultant I am seeing today is very good, I have seen him in the past so hopefully he will sort me out.

I hope it subsides soon too. 🤞

[Wheat]

hello Jillymo , just read your posts and yes life is 'eventful' so sending you all best wishes. 🥰xx