I found out recently I have Lyme disease, that’s why I’ve been deficient in vitamin B12, Vitamin D and Iron. As Lyme makes you deficient in all three!
I’m still continuing B12 injections, taking vitamin D and taking heme iron tablets. Thinking of going back on iron/ferritin peptides as they have less risk.
So finally I’ve got my answer.
What about folic acid, is this something worth considering as it can help with B12 and possibly improve your well-being.
My folic acid is optimal. This has been a rollercoaster
Good work!
Hi Qwertystar
What a relief to have a root cause and at least now you can move forward. Great persistence!
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It took a lot for me to do this. I kept persisting regardless what the NHS were saying. The Lyme test the nhs do, came up as a false negative. Good thing I had my private gp onside and he did the correct test. I honestly didn’t think anything would have come up with the private Lyme test, which was sent to Germany.
Good thing is I have family in Germany and they are contacting Lyme specialists. I will have treatment here and have further treatment in Germany.
Hi that’s great news and I am so fed up of hearing how the NHS is letting people down. A young lad I know today has had an op for sepsis - he’s T1 diabetic, hypothyroidism and liver issues and yet they ignored him - fobbing him off. Another op on Friday. It’s shocking and we MUST ROW OUR OWN BOATS and help others to do so.
Please let us know the treatment and every best wish for a speedy recovery.
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Could you please send me information on how you go about getting a private Lymes disease test please.
hi pamelashep
I have no idea how you would get the test privately. I think you would have to research and see what was on offer or perhaps get a private GP to request one via your NHS GP - not a satisfactory situation at all.
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The clinic is called Levitas clinic. They have clinics in London, Guildford and Esher
Glad to hear that you have found an answer and that this is a treatable disease. Relieved to hear that your German family members are onto it !
Thanks for the information. I can now add Lyme disease to the reasons for B12 deficiency . Lyme disease is getting more common now in U.K. thanks to global warming which has given the ticks which transmit the disease, better conditions in U.K. .Apart from causing B12 deficiency, it a horrible disease which can bring a lot of nasty symptoms and consequences.. An infected tic bite needs early treatment . A “bulls eye “ rash must always be investigated ….
congrats on getting to the bottom of things!
Thank you. That was just half of the battle. Now need get treatment
Hi Qwertystar, that’s great you have found an answer, but a shame you have had to work it out yourself! I have often wondered if I have Lyme disease, my NHS GP did a Lyme test which came back negative. Could I ask the name of the private Lyme test you took?
my doctor used Armin labs for the test. All I’m aware that he asked for a Lyme test.
Hi,
Good you have found a treatable cause.
I've always wondered if I might have lyme disease.
A few uk Lyme Disease websites
Thank you for this
Good morning. Thank you for posting this. I am 62 and when I was 19 I was bit by a tick and contracted lyme disease, but I did not know until over 35 years later. By that time I feel all the damage had been done that it is known for. I was diagnosed with B12d/ with a positive IFAB test meaning I have PA. I just went to the mayo clinic last week, and lyme came up and they told me "Ya but you don't have it anymore". only traces that it was there. So past infection but it is not showing up anymore. I tried to ask the MAYO clinic what about the damage it already caused? Deflected. Never answered. I was diagnosed with stress and fibromyalgia. B12 D and PA were never even mentioned. Which was why I was there. Highly disappointed in Mayo Clinic. Worthless for PA/B12D. I strongly believe Lyme disease among several other factors, is why I have PA. But I can't get anyone to hear me. I have a call into an anemia doctor in chicago that helped actress Keltie Knight find what was literally killing her. She was previously diagnosed with chronic fatigue syndrome LOLOL, stress and overworking. Might as well have been fibro. I have had over 44 years of doctors try to tell me it is fibro, MS, chronic fatigue, stress, etc. I believe the lyme and Lupron injections caused my PA. The doctor's name is Dr. Shikha Jain, in chicago. she is an oncologist but she found the anemia that Keltie Knight was suffering from. And I believe she suffers from anemia too. Also, Keltie had endometriosis, which I also had/have and scar tissue. I don't know if I can put her name on here, if it is for something good. If not please remove it. I am sorry, I don't have any answers for you. I am still looking myself. Lyme is very misunderstood and misdiagnosed as is B12D/PA, so is endometriosis and adhesions.
Good luck
Have you thought of following the natural treatments for Lyme?
I would love info on that. I will google it and see what I can find. I always like to go the natural route if I can.
This is the Facebook I’m in and it’s been so helpful for me
Thank you qwertystar, I will look at that.
low b12 - When will this improve?
Any links - PA and Kidney disease?
4 Autoimmune diseases and fed up
B12 & Vitamin D Deficiencies 
