breathlessness and bp: hi, looking for... - Pernicious Anaemi...

Pernicious Anaemia Society

31,952 members23,091 posts

breathlessness and bp

Jb01 profile image
Jb01
11 Replies

hi, looking for advice please.

Had PA and AIG for 5 years, I inject myself and last 3 weeks have been having episodes of breathlessness/palpitations, have seen Gp and listened to my chest didn’t think heart, but have done lots of tests, not back yet.

My BP is always low but at GP was high for me. I’ve upped, iron, folic and bp injections.

Any thoughts please

Written by
Jb01 profile image
Jb01
To view profiles and participate in discussions please or .
Read more about...
11 Replies
jade_s profile image
jade_s

Do you have any recent iron or thyroid labs you can share? Being low in one or both can give breathlessness& palps and affect bp.

Good to hear GP is following up.

Jb01 profile image
Jb01 in reply to jade_s

Hi Jade, both tests always come back ok and DRs here never seem to do T3 testing, but thanks

jade_s profile image
jade_s in reply to Jb01

As you may or may not know, labs may not actually be "ok" even when they say it is. If you like, post your results and we can take a look.

You can get T3 tested privately in some places. I'm assuming you're in the UK? If so: thyroiduk.org/help-and-supp... Are you on the ThyroidUK group? healthunlocked.com/thyroiduk Lots of great thyroid advice over there.

Jb01 profile image
Jb01 in reply to jade_s

Thanks I’ll look into it and when blood results are back I’ll post thanks

Twaddletop profile image
Twaddletop

Have you checked your blood oxygen levels at all? I went thru a phase of breathlessness last year and put it down to being overweight and hot. That is or was unusual in Scotland. Cutting a long story short, I ended upin hospital where they discovered blood clots in both my lungs and I’m now on Apixiban for life. Just a thought because left to my own devices, I’d never have checked and probably wouldn’t be here.

MrsTuft profile image
MrsTuft in reply to Twaddletop

Were your blood oxygen stats low then?

Jb01 profile image
Jb01 in reply to Twaddletop

Yep oxygens always alright, but it’s the first thing I get checked usually

Twaddletop profile image
Twaddletop in reply to Jb01

That’s good cos I went thru quite a lot in the hospital when mine wasn’t. I hope you get some answers soon x

mick33w profile image
mick33w

Two things. I have had frightening episodes of breathlessness I finally associated with having eaten soy, soy additives, or nutritional yeast. Pan sprays, too, have soy. Can be hours long between intake and symptoms and wake me up at night strangely with a bizarre lack of a sense of an urge to breathe yet feeling like I am drowning & unable to catch my breath (occurring only in deepest of sleep).

B12 helped with a host of other things, including occasional periods of daytime shortness of breath, now also gone. Terrible feelings. It helped to relax, stretch shoulders & chest, distact etc. Now it is all a memory.

MrsTuft profile image
MrsTuft

Potassium??

Jb01 profile image
Jb01

Drink lots of coconut water which seems to keep me alright thanks

You may also like...

Breathlessness

I would like to say I have found a solution for my itching after B12 injections and hope it might...

Breathlessness

still very bad breathlessness. I have read that shortness of breath is caused by low red blood cells

Breathlessness

deficiency as the reason for my breathlessness, even after having breath tests, an ECG, etc. Can I...

Breathlessness

suffer with breathlessness even though their bloods are 'within the range' as every doctor I have...

Low BP, Chronic constipation.

I have PA and get my injections every 3 months. After the injection I am quite low and lethargic for