I’m struggling low vit d low folate low b12 but doc won’t accept medichecks bloods so I have to have nhs ones and can’t get them done until 1 june ive waited two weeks feel rubbish. Meanwhilevthyroid bloods from blue horizon
Tsh. 5.77. 0.27 4.20
Free t4. 19.7. 12 - 22
Free t3. Low. 3.08. 3.1 - 6.8
If I increase levo I become hyper and jittery how do I get t3 up I’m so exhausted especially waiting for bloods to confirm low b12. Low folate low vit d.
Can I take t3. Where do I source them if so
I think you meant to post on the TUK forum, not PAS. They will help you with labs and sourcing 
Hope you get your results soon. Waiting is the worst part!
Hi Nija1,
I cant see any reason why your Dr wont accept medichecks result but then I dont understand Drs logic full stop. I wouldn't increase your levo if warrented it needs to be done by your endocrinologist if you have one and needs to be monitored. I take t3 but cant say it has made a lot of difference to my energy levels.
I am not medically trained but I would have thought your B12, vit D and folate need to be looked into and could be the cause of your fatigue. I also has the same results but once on B12 injections and other deficiencies corrected a little of my stamina returned to the point where I were able to function a little more - not back to my old self but I am coping better.
Have you stuck those results on thyroid UK ? If not do so to see what others comments are. With regard to your low vits get the Dr to test ASAP. If your vitamin levels still show low insist they are treated, be persistant. If no joy see another Dr - Good luck 🤞🍀
Doc says he will act on nhs results only but I can’t get them done until 1 june
Not too long to wait so stick with it, you have no other choice. If you have your low B12, D and folate levels pref with the lab margins post on here.Thyroid I recommend posting on thyroid UK who are normally very good at explaining thyroid results - I have done this myself.
When your doc does your tests make sure you get a copy of the results with the lab margins if possible - then post on here. I think the 1st of June is next Tues so stick with it.
Hi ninja1,
I’m so sorry you feel rubbish and having to have more tests, I used to say ‘I feel like I’d been hit by a truck’. Sincerest apologies to those who have been very unfortunate to be involved in a road traffic accident. But my description wasn’t medical terminology,
So, just as a helper:
Extreme fatigue
Poor memory
Poor Concentration
Low mood
Dizziness
Inability to keep warm
How your tongue feels
Aches and pains
Breathlessness
Poor appetite
Constipation
How your skin, nails, hair feels - texture, pitting.
As some suggestions and just tick appropriateness. Sorry I’ve very poor knowledge of thyroid problems or symptoms. (On my to do list).
Best wishes
I’m sorry you’re struggling ninja1 and no wonder - TSH looks higher than it should be and, feeling like this with low B12 and folate, it must be so disappointing that your GP won’t accept the private test results to start treatment 😟
If it’s any help, I found that, once B12 deficiency had been adequately treated, (e.o.d. self injections), I didn’t need as much thyroid medication and am now able to function on two Metative II a day.
Marz may come along to help more with thyroid results or, as others suggest, TUK forum.
Good luck getting better treatment.
Have ya ever been checked for the MTHFR mutation on top of having whatever it is you have? It may mean you cannot process synthetic forms of folic acid. Just something to think about. I saw someone say this wasn't the correct forum. But maybe this will help you! It can also cause low folate low vitamin d low biotin and collagen. On top of everything else
I had a commercial genealogy and health dna test and it came back with a MTHFR mutation. I havent told the gp - I feel with my PA diagnosis and self treating, it wont make a difference.
Are there other consequences? Should I pursue this with gp?
You can't process things like the synthetic folic acid need to take something like L methylfolate after having your folate levels checked. Vitamin D, B12 uhhh, biotin, collagen all things we can't methylate well. They could also need supplementation. You have higher risk of things like depression and anxiety and thyroid disease and deep vein thrombosis and blood clotting problems. Etc etc. Depends on which type you have. Going gluten free can really help you. Infertility in men and women are higher. Eat a lot of calcium rich food because with this type of mutation it will take it from your bones and your blood tests will always appear normal until it's really really bad. Instances of arthritis are higher earlier on. Uhhh tooth enamel could be poor. Etc etc. It does a lot of bad stuff.
Thank you, I will speak to the gastroenterologist. Is that the right specialist?! Thanks, I hope you are managing if.
I'm not sure I spoke to my gastroenterologist for the B12 stuff but hematology is the one that gives me the B12 shots and iron infusions and runs tests every 6 weeks.
I guess I'm just about to find out...
I don't know if we're allowed to mention the f-word on here, but there is also a very useful Facebook group, ITT Improve Thyroid Treatment, where members have done some fantastic work re T3. It's another thing that us a massive lottery with the NHS. Norfolk and Waveney sticks in my head as one place where they did successful campaigning for it, so it would be lucky if you happen to come under their CCG. Most often, it seems, T3 needs to be prescribed by an endocrinologist and then a GP will continue to prescribe. Best of luck with it all.
Do Doctors ever listen?
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