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Could this be b12 deficiency? What is wrong with me?

Whatiswrongwithme profile image
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Hi all

All started last year when I was feeling tired and light headed, after a few weeks it didn’t go away so I spoke to my doctor. She ran some blood tests which came back:

Folate 3

Ferritin 4

B12 525 (not supplementing)

She put me on folic acid for 3 months and iron tablets.

3 months later my levels had risen to

Folate 20

Ferritin 33

Basically I haven’t felt well since, I feel drunk a lot, like my eyes don’t catch up with my head movements, tinnitus (have had this in my right ear since I had my ear syringed years prior but now in both ears and more noticeable) and in the last 4 months light sensitivity in my office which is making me feel funny in my head. Heart palpitations.

I have had:

ENT appointments, can’t find anything wrong, ear MRI normal.

Two eye appointments eyes are fine apart from glasses for driving (distance)

I am having a brain MRI next week.

Had another blood test in September

B12 580 (Did try a b12 spray for a few months)

Folate 9

Ferritin 42

I asked doctor about active b12 and she didn’t have a clue

Now I’m off b12 and looking into an active b12 test privately, but I’m so scared that by waiting for longer things are gonna get a lot worse and real damage could be done.

I am thinking of writing to my GP asking (pleading) to please consider b12 trial But I know I will get nowhere until my brain mri comes back.

Any advice? Thank you

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Nackapan profile image
Nackapan

Your symlyknd fk sound very familiar.Tinnitus done csn disturb your vestibulae system.

Have tih trued Cawthorne pysio exercises?

I'm light sensitive. Only artificial lights.

Msjd ne stagger walk and ferm off bakance

Also tight head

Abd eye sockets headaches % migraine episodes

I've had 2 brsin mri scans

Eyes healthy ect .

I'm on b12 as serum blood test was 106.

Still have loads if vestibular symptoms

Yih Can have functional b12 deficiency

Mma homocysteine s IFA tests

Hooe you get to the bottom of if

Ard yih taking s basic multivit . To sustain your folate snd ferritin

Was vit D tested ?

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