Hi all
All started last year when I was feeling tired and light headed, after a few weeks it didn’t go away so I spoke to my doctor. She ran some blood tests which came back:
Folate 3
Ferritin 4
B12 525 (not supplementing)
She put me on folic acid for 3 months and iron tablets.
3 months later my levels had risen to
Folate 20
Ferritin 33
Basically I haven’t felt well since, I feel drunk a lot, like my eyes don’t catch up with my head movements, tinnitus (have had this in my right ear since I had my ear syringed years prior but now in both ears and more noticeable) and in the last 4 months light sensitivity in my office which is making me feel funny in my head. Heart palpitations.
I have had:
ENT appointments, can’t find anything wrong, ear MRI normal.
Two eye appointments eyes are fine apart from glasses for driving (distance)
I am having a brain MRI next week.
Had another blood test in September
B12 580 (Did try a b12 spray for a few months)
Folate 9
Ferritin 42
I asked doctor about active b12 and she didn’t have a clue
Now I’m off b12 and looking into an active b12 test privately, but I’m so scared that by waiting for longer things are gonna get a lot worse and real damage could be done.
I am thinking of writing to my GP asking (pleading) to please consider b12 trial But I know I will get nowhere until my brain mri comes back.
Any advice? Thank you