Not sure how everyone is getting on with access to their G.ps if needed. I've not seen one for over a year .
Did get a phone call telling me to exercise more snd eat less as cholesterol high.
So I've tried . Lost weight. (Didn't need too) Tried upping my walk. Which was fine if j did absolutely nothing elses Then sat on my bed with head pains jittery ect ect
Never did get to two miles but did relieve some boredom.
Then very dry scalp that is a problem now. Tried everything and the itching is driving me. mad. Lowering fats might be a causes .
Ill at present from vaccine. Decided as no follow up since Mid December (phone call) concerns with 'reaction' and lack of progression all round .
I'm presently nimber 27 in the queue for the doctors. 1.5 hours in.
Am intolerant of the phone so csnt 'sit on it' or have sound. and hope j dont miss the moment they do pick up. You then have to wait for call back. I have bad memories when very poorly and an ambulance decided not to come. waiting for a doctor to ring. It didnr ring.
. So i was taken to a and e . Not lightly done. I coukdnt walk. On that occasion told an anxiety attack and was questioned time and time agsin about taking something. Pupils were dilated . I realises now they dudnt believe me. Was told what to say to get a ct scan . Noone said a thing to me. I nearly fell out the wheelchair. I got a grunt and was shoved back into it . Left outside a door.
Wasnt told what tk do so sat up before it it had finished. My fault apparently.
This was before a b12 blood test was done at the surgery at later date and reminds me of the Sally pachilok film.
I know covid is going on
I do wonder how many are suffering with no access to medical care .
How is everyone managing. ??
As an ex NHS worker I'm usually defending the service. We couldnt do without
I'm wondering now what we are left with.
It's also been 17 months now since My referral to neuro Opthalmology .
I chased that before and was told am still In the system. I've written for a blood form off my own back. That has been posted but the surgery have noone to take bloods now?
Acute care is happening thsnk goodness.
I'm sure I'm not alone with this i find it worrying
My mum still not had ger b12 grrr.
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Nackapan
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I'm so sorry this is troubling you so much. You have made great progress yourself and I can so understand why you'd like a bit of extra care now.
My report is that I have managed to access more care in the last 4 months than I have been able to for decades.
I'm not sure if it is because I have finally got my chronic pancreatitis dx from Addenbrooke's but I don't think so - I think my Drs are getting a system worked out. I use another surgery for someone else and that is even better.
I do think that some of it is because I have developed an understanding of the system and am very straightforward with them but I genuinely have had much better care recently. My latest hospital stay was very different - much better - than previous experiences.
(Although saying that they managed to superglue me together from the top of my bottom cleavage to halfway down my thighs, including my girlie bits in between and cut a nerve when I had surgery 3 weeks ago, but...)
Oh, and I'm desperate for an urgent blood test for diabetes. On 27/03 I booked the first one available out of 5 hospitals and that's on Friday, 16/04 which means I won't get the results until the following week.
But even still, it's miles better than it has been.
I have been using the e-consult forms quite a bit. They are terrible and not fit for purpose - if you are ill enough to bother the Dr then it refers you to 111 or A&E - but if you ignore 90% of what it asks you (lie, basically) and just write a couple of sentences about your problem in the boxes where you can write then they have to see it and respond within a couple of days. The good old "papertrail" ensures action.
However I've just gone down with shingles again 🙄 and used 111 first thing on Saturday morning and by 9 am there was a script for antivirals for me at my local pharmacy. Brilliant!
To some extent what I have found works is to work out what you want, keep everything as simple as possible and ask directly. "Can I have x for y because z" and it isn't too bad.
Sending you care and sympathy and lots of luck and best wishes to help you work something out and get some help soon. X
Update. Bloods okay. 9 days after and now at least in the garden and able to cook a simple meal. So weak . Not able to go for a walk . Getting there. Hate leaving things open ended when you've asked. Still not found that programme lol
Will eventually. Hopefully be able to watch it by the time someone does!!
Hope all is well or as well as can be and everyone can enjoy a bit more warmth and light.
Keep going, Nackapan. Glad you let us know. Make the most of the sun and the evening light, even if unable to do much yet.
Quite pleased with progress on your painting - hard to know when it's finished. It's like saying "that's the nearest to perfect I can reach" - but there is also the risk of overdoing it. Worse problems to have.
Best wishes that your similar stubborn attitude to giving up will bring you a swift recovery !
Portrait-painting is not a very energetic sport, luckily !
Every time I've had the granddaughters over for the day, I end up sleeping all evening and all night -and next day, my back is killing me. Then I remember why: running, football, scooting, catching kids as they leap off playground apparatus, scooping kids out of puddles...... I wouldn't have ever believed it possible a few years ago.
Yes I am. Vaccine a set back . Not over it yet. Last time I saw my grandchild we went for a short walk with the buggy. Not actually done that before as usually stayed behind for the break.
I've not even got round the block in 11 days! I usually manage that .
Just waiting for it to pass .
My friend still in work ad a practice nurses said she's seen alot take a few weeks to recover. As starting from a different baseline it gives perspective .
Still shocked though.
Yes children are alot of fun and alot of bending.
Watch your back ....says a retired Nursery Nurse !
Good morning Denise I’m so sad to hear about your health issues your so brave and the way you cope with it all,I really admire you.you still make the time and effort to help and advise others here you really are a wonderful kind person and don’t deserve all these horrible things that happen to you.
I’ve been with a number of gps practices over the last few years and each one has been steadily worse than last one,I had high hopes for this one as I really liked the modernness of their online system and the fact I could email reception which has been super efficient I have to say but the actual doctor is a complete Plank.
Ive to discuss one thing only so if I say I have kidney pain possibly because of my stones then I say I also have a shocking headache but not sure if it’s the head injury that’s caused that or it’s a result of a kidney infection he’ll snap at me one thing only,I just can’t communicate with this one at all.
It’s quite a challenge these days to even see a gp here.
I hope you improve quickly from your surgery and those horrible shingles and thank you for just being here take care - thrones xx
Hello Thrones!Thank you for your lovely message. I feel if I help someone else it turns my ridiculous health issues into a positive thing - when I'm not much use to me, at least I can try to be useful to someone else!
With the Drs it seems like it's always a case of the simpler the better - which, as you say, can be inefficient to the point of nonsense.
I'm so sorry you've got a "computer says No!" one. Most unhelpful.
Unfortunately new patients to a practice usually get allocated the one that no one else wants to deal with. 😔
Hence why I'm reluctant to change mine, even though I know that other local practices are said to be better.
Hi Denise gosh I never quite thought of that I think your probably spot on as this is not my named gp but always the one who phones me and then if needed he’ll make an appointment for me to go in.well deduced lol I’ll bear that in mind for this next consultation and say no I want to see my named gp,she’s a lady so might be easier to talk to. Stay well Denise take care xx
Good morning Nackapan I’m so sorry to hear your still going through all this there’s not much advice I can offer you as it seems to be quite the norm these days to not get the service we worked hard to pay into all our working lives as you well know.As far as your poor mum that’s sheer neglect from her gps and it’s so harsh on you when your trying to cope with illness yourself.
All I can do is keep paying private consultants in the hope I can offset some of the treatment I require on the nhs and I have to say the consultants have been great but the gps seem to really have a stick up their a...s about me daring to go to private medicine for help when they should be thanking me for saving time and resources.
I’ve got to find £500 in two weeks now for nerve conduction and muscle testing via another neurologist and I’m still trying to pay the professor who referred me to the first excellent neuro who also needs paid and now this new one who specialises in nct then next month it’s the lupus consultant I have to pay to see,I’m having more bloods done tomorrow via medichecks to try and keep down his clinic tests costs.
We just have to do what we can to get a diagnosis and I’m almost there now so next week when I have my blood tests back I’ll go to gp again and try and hammer things out but I’m weary of the constant battling.
I hope you have a better day today and get to enjoy some time in the garden still well wrapped up it’s still chilly out of that sun.take care xx thrones.
Isn't it sad that we have to go private to prove things are not right with us. It cost me around £15,000 altogether. Then the GPs got funny with me, I obviously upset their ego in proving them wrong.
I wish you both a speedy recovery.
I always thought if I'd been married to a doctor who seen me crawling along the floor to the bathroom then things might have been different.
That’s the thing sallyanni these are all very serious illnesses and the only way we can make any progress towards treatments for them is by paying privately which we can Ill afford.I feel completely vindicated based on the proven results I’m getting via scans and bloods,even just the self injecting of b12 on my required frequency has changed my life so much,confident me is back and I’m coping with life so much better but in all seriousness it’s no thanks to numerous gps ,I’ve not had one yet who’s not resented my willingness to go private because he’s failing to provide me with the care and investigations needed.take care
in reply to
Just imagine where we would be today if we didn't have the finances to fund it.
Shocking to think of all the taxes we've paid and then have to pay again to get treatment.
I'm so sorry to hear that you having such a difficult time. You must have an great inner strength that keeps you going.
What I don't understand is how Gp practices vary so greatly. I feel so frustrated on all of your behalves. How can the standards be allowed to vary so much? What is the role of the Care Quality Commission?
During the pandemic I have been visited my GP practice over 50 times. Mainly for loading doses following a diagnosis of PA. E. consults have been responded to the following morning and then I was given a face to face appointment that very day. I have 2 appointments this week alone. The Practice Nurse changed a dressing for me yesterday even though I had an appointment for my B12 injection and without me asking.
Whilst I understand I am fortunate to have such a good GP practice this surely is what everyone deserves. Although they still needed to be educated regarding PA.
I would just like to send my very best wishes to everyone that is suffering. As inspite of all the excellent care I have been receiving it has been a struggle and continues to be so in many ways.
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