advice finding a doctor that will be ... - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,985 posts

advice finding a doctor that will be open to weekly injections

robinsnestwalke profile image
11 Replies

I'm fairly new on here, and a couple of weeks ago saw mention of somebody that found a different type of doctor that was willing to give b12 shots more frequent, but it wasn't a normal MD or General Practitioner. Can't remember or find the post. I was diagnosed 8 years ago, but the burning in arms, hands and feet is worse than ever, along with many other side effects. Just trying not to give up really, but once a month b12 doesn't seem to ever make me feel even the slightest bit better. So I would really like to experiment and get more often, maybe even change the b12 to Methylcobalamin I see mentioned quite a bit. I'm in Northern California if anybody is local and knows of a caring physician, even if I have to do the injections on my own. I'd be willing to get a dr from out of area too and could send them the original reports, etc.

Written by
robinsnestwalke profile image
robinsnestwalke
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Nackapan profile image
Nackapan

Why dont you self inject between your prescribed ones . Thars what I do now. Never dreamt I would but needs must. I do sc I between

Methyl can disagree with many . Stick with what you know!

robinsnestwalke profile image
robinsnestwalke in reply toNackapan

unfortunately it's not as easy as that here in the US, one must get a prescription from a physician for the vitamin.:-) Thank you for the reply though.

Nackapan profile image
Nackapan in reply torobinsnestwalke

Oh yes same here in the UK. Prescription is needed.

Alot of us buy from onine pharmacies from abroad

Lunario profile image
Lunario in reply torobinsnestwalke

I'm sorry to hear about your struggle to get what you need.

I agree with Nackapan that it's best to stick with what you know and to self-inject, at least in between your monthly injections given by your MD or GP.

It could be that you read my post, I wrote about anthroposophic physicians who have a more holistic approach.

I recall another post from somebody in the US who orders hydroxocobalamin or cyanocobalamin from Australia. Many people here order their medication from German online pharmacies because it's available otc here (and in Spain as well, as far as I know). I don't know whether they will deliver to the US or not. But maybe this will help you to bypass the need for a prescription or to find an MD who understands your condition and is willing to help.

The good news is that you will find support in this forum. Your fellow-sufferers have compassion, empathy, and will help you with their own experience. I am glad that I came along here, I wish we had something similar in Germany.

Best wishes!

MoKayD profile image
MoKayD

Did you ask you doctor for more frequent shots? I was prescribed monthly shots but found that the 4th week was rough for me. I asked my doctor if I could come in every three weeks for my shots and he said no problem. He also gave me a prescription for b12 so I could self inject if I want to.

Emmers5 profile image
Emmers5

Are you in the chapel hill area by chance? I do know a kind dr in that area. She is a DO rather than MD

robinsnestwalke profile image
robinsnestwalke in reply toEmmers5

I wouldn't have minded the fact the physician is a DO, only, I'm in Northern California. Doubt that would work out.:-) Thank you for trying.

Emmers5 profile image
Emmers5 in reply torobinsnestwalke

Silly me! I misread! Good luck, I'm sure there are some kind Drs out there!

Eowyn1 profile image
Eowyn1

Hey - sounds like you need more frequent injections -- I do every other day, self injecting , at this point -- everyone has very different needs for the B12 and each of us has to figure out by trial and error what works for us. I do know that injections of methyl B12 require upping potassium intake alot, and closely monitoring Vitiman D, Iron, folate and B1. Also to absorb all the B vitamins you need a good baseline of Essential fatty acids. Jeez there is alot no one has told you -- get the book "What you need to know about pernicious anaemia & vitamin B12 deficiency" by Martyn Hooper MBE. If you want to talk or do a chat we could do that, I just hate typing endlessly. I am from northern Calif and live over in Utah now. Not sure how to do a "chat" with the chat feature I think clicking on the thought bubbles above does something. Anyway good luck!

robinsnestwalke profile image
robinsnestwalke in reply toEowyn1

First, thank you for responding and your willingness to chat, I understand about not wanting to type all day.:-) I'm going to order the book you suggested. I just got off the phone with a Naturalpathic clinic in Sacramento and will be doing an initial free phone appt tomorrow morning. Got some quick pricing on the phone and it appears to be $160 for an initial 30 appt with DR there and then the receptionist I spoke with indicated coming in for injections and she didn't know if they would let me go with a script and allow home injecting. It's just that I want/need to keep the costs down as I'm not working and on Medicare. Anyway, wish me luck and that tomorrows phone appt goes well to get more frequent injections and with the methyl. Thank you again!

Eowyn1 profile image
Eowyn1

P.S. Methyl B12 is the one to take if you have any nerve damage

Not what you're looking for?

You may also like...

Being made to go back to 12 weekly injections

I have just had my 8 weekly b12 injection and when rebooking was told (again) that there is no...
KathrynS profile image

Any suggestions as to whether I need a B multivit with RDI or higher please ( if I get the go ahead for injections!)

Hi, have really appreciated all your help this week with my Active B12/MMA results. I'm just...
Jo5454 profile image

Could this be a potassium problem.. advice?

Hey again guys! I'm going to try to cut the pain with my outer chest/collarbone area short. About 3...
Ladyawkward profile image

What do I do for the best? B12 injections now to be denied?

So, I'm having the B12 injections and I know it can take months to help neurological problems such...
chocoholic17 profile image

Twitches

Hello everyone. Looking for a bit of advice. I have had a really REALLY annoying eye twitch off and...

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.