Long story but I have had a couple of head MRIs due to lesions that are perpendicular in nature. To check if they have increased.
I had access to my own scans so I knew that they were checking for MS. As I could read the medical terminology.
But my GP (newish to me) never told me. I don't know why, it would not have alarmed me. I was confident I did not have it, mainly from understanding Dr. Chandy's work.
Yesterday my doctor told me that although the differential is still there, the chances are slim to none due to stable findings, no increase.
I told him that I was not worried anyway because I suspected this was due to a prolonged period where my b12 deficiency was not found.
He swivels to the screen. He doesn't have access to my 103 when it was found. But I know he was looking because at the same time he was saying 'Well with severe deficiency it is possible'. So small win. But I do believe since he has no idea how I was almost bed bound he probably thinks I am exaggerating a prior deficiency. Nope and don't really care. What I do care about is this constant looking at numbers to judge symptoms & their utter lack of knowledge of how a vitamin deficiency can affect a life so adversely from head to toe.
When I started with him he had b12 on my first blood work. I said are you aware that testing after diagnosis tells you nothing? (Said more eloquently 😊). He said he did but obviously he didn't as he still wasted money and kept it on. By the way it was 925 which surprised me as I was expecting thousands.
Anyway I was not sharp enough in the moment yesterday to say, Well of course they have not increased (the lesions) because I get b12 shots.🙄
Which pretty well immensely helps the theory that it was prolonged undiagnosed b12 deficiency that did this to my brain. I would laugh and celebrate if they were to lessen, which he says is medically impossible.
He was all blood sugar, cholesterol, and blood pressure as the usual suspects. But have never had any serious issues at all, with any of them. So I don't even know what his point was, except to down my theory somewhat. And that does not explain them looking like an MS case. (And my GP is a thorough, caring doctor. But is not aware of the damage that b12 can do & the ignorance in the medical field.)
This is exactly what Dr. Chandy's work did, it revealed how MS & b12 deficiency can be mistaken for each other. He gave b12 shots to people who had been diagnosed with MS, but never really had MS to begin with - despite diagnosis. And in their situation of course they had an increase of these perpendicular lesions, because they had no b12 shots - so increase over time (plus symptoms)= MS in all their ignorant eyes.
And round & round we go.
Thank you Dr. Chandy for having your livelihood and reputation affected due to the ignorant, in order to selflessly & courageously save lives. And the daily quality of life for so many.
To actually do what doctors pledge to do.
That is the definition of a hero.
Here's to Dr. Joseph Kayyalackakom, so very appreciative of your courage & your work. You will always be remembered.
demyelation of white matter in brain update
Is it MS or PA??!!
Why is folate so important?
Dr's visit as expected yesterday- he "doesn't believe" evidence I printed off for him :(
Next Steps and Recovery Outlook
