methylcobalamin to reverse autism

[europegirl]

has anyone heard of using MB12 shots to reverse a child in the spectrum? or improve their symptoms? would be grateful for any response on this. any insights would be greatly appreciated.

[Nackapan]

Hello. I have read b12 injections can support children on the autistic spectrum. Studies are being done. I don't think personally anything will reverse the condition. But anything that might help is well worth looking into.

[europegirl in reply to Nackapan]

I’ve read many success stories on it but I am still thinking of other ways and have also consulted a GP

[Foggyme Administrator]

Europegirl. Please see the reply I've left on your previous post:

healthunlocked.com/pasoc/po...

Irrespective of any potential benefit (or not) from methylcobalamin, I would advise against attempting to inject a child with vitamin B12 (as discussed in my previous reply).

Please seek medical advice and only proceed with this if the B12 is prescribed and authorised by a fully-qualified medical practitioner.

Really sorry if that’s not what you want to hear and I wish you luck in finding ways to improve your daughter's health.

👍

[europegirl in reply to Foggyme]

Thanks! I have consulted a doctor about it and they are clueless! Not sure what to do now.

[Foggyme Administrator in reply to europegirl]

Hi europegirl.

Just wondering if your daughter is under a specialist...they may be better I formed than a GP...though no guarantees, unfortunately.

Had a quick look on the internet and found this charity:

autism.org.uk

Might be worth contacting them / joining because they will be able to offer focused support and may also be able to advise about medical professionals who are experienced in dealing with the particular issues related to autism.

Might also be worth looking on the internet to see if there are other charities / organisations who offer support.

Very best of luck.

👍

[europegirl in reply to Foggyme]

I have checked out this site and have sent them an email. Thank you!

[clivealive Forum Support]

Hi europegirl I have an eight year old step-grandson with autism and I too would dearly love to know of any treatment that will help.

Is your daughter a "faddy eater"? Is she able to eat B12 rich foods e.g. meat, fish, seafood, eggs, poultry and dairy produce as these are natural sources of the vitamin?

Also can she eat plenty of vegetables for Folate - sprouts, broccoli, asparagus, spinach, peas, beans etc?

[europegirl in reply to clivealive]

Thank you for your suggestions. My child is not a fussy eater and eats meats and vegetables well. I’m still considering other options and have noticed an improvement in her from using a good fish oil daily and going gluten free.

[Gambit62 Administrator]

as far as I am aware there is no definitive study proving that methylB12 helps with autism

Extract from a relatively recent review of treatments for autism (2016)

ncbi.nlm.nih.gov/pmc/articl...

Methyl B12 has been studied in two randomized, placebo-controlled trials as a treatment for both behavioral symptoms and core symptoms of autism spectrum disorder in children. One study found no significant difference between the placebo group and the active treatment group, and the other study found significant improvement in clinician-ratings of global improvement but no difference in parent-ratings of behavioral or core symptoms when compared to placebo.

[europegirl in reply to Gambit62]

Thank you. It’s confusing bec there are many conflicting anecdotes on it.

[Gambit62 Administrator in reply to europegirl]

anecdotes are frequently quoted by someone with a specific agenda. That doesn't mean that the experience being reported isn't valid but you need to remember that we are all individuals and what is true for one very specific individual set of circumstances doesn't mean it will work for everyone - or that it is even safe for everyone.

[fbirder]

Autism is one of those conditions beloved of snake-oil merchants. It is relatively common and there is no way to accurately judge whether or not somebody has it, let alone how severe it is. And the parents of children on the spectrum are desperate for something to 'fix' their child.

If you do enough studies that test how a child with autism responds to substance X then you only need to test a few dozen 'substance X' candidates before you'll find one that looks as if it will work. The clue to these sorts of studies is repeatability - and most of them fail. Unless you repeat it several dozen times - then you'll get another positive result just by chance.

If there were any single thing at all that could reverse autism then we would know about it already.

And it's important to remember - the singular of 'data' is not 'anecdote'.

[Lisarags1]

Hi. Working in the field for 25 years unfortunately no I’ve never seen any therapies like that work for children with autism other than ABA. The premise behind that thought is that if you actually have pernicious anemia (I do) and it gets bad you suffer neurological side effects. In babies and children with it they appeared as to have autism. However only if you have pernicious anemia and your body attacks b12 therefore you can’t absorb it does it cause neurological damage. Once you are treated and children with PA were treated with shots they were cured. But this is only because the have PA and not really autism. There is no use in doing it because your body will just urinate it out if your body doesn’t actually need the b12. B12 is responsible for memory, vision, speech etc. for instance I had PA for years and did not know. My b12 stores were depleted. I started stuttering, had whatbwould be diagnosed as Alzheimer’s type symptoms in my 40’s my memory was shot short term memory I couldn’t drive I would forget where I was going and get lost, my vision was blurry. If left you can die from it. The cure is injections for life because by mouth in vitamins or food people with PA can never absorb it. So that’s a history of where some people subscribe to b12 shots for children with autism. It was a fad years ago. No unfortunately it does not help. You can give a b12 vitamin or liquid and you can’t overdose on b12 again like I said your body just pees it out. The only reason to inject it is if you can’t absorb it and believe me it would have come back on a simple blood test and you would know if that were happening. The exhaustion is severe. Injecting it has to be intramuscular so I wouldn’t give your child undo pain maybe ask your doctor about a liquid form. You can get it anywhere. Good luck!

[europegirl]

So you’re saying that all those articles and numerous videos I’ve seen of kids’ Autism being reversed was because they had PA and not autism? That’s really interesting. Not even once have the parents mentioned the word anemia in all

Those videos. This is why it gets confusing bec when you see all the success stories of kids diagnosed with autism and then being reversed by mb12 you obviously

Would think it’s an effective treatment. Thank you for your insights it does help me understand b12 better. 😀

[PInk54]

Hi europegirl, I'm wondering if you've read Sally Pacholok's, "Could it be B12?" and the paediatric version - many pages on the autism connection :

"A study of 3,766 children aged 4 - 19 (using data from the second phase of NHANES III 1991-1994) found that 1 in 200 children had B12 levels less than 200 pg/ml. This clearly indicates that B12 deficiency is more common than previously recognised. It is alarming that the prevalence of B12 deficiency in infants and young children has not been studied or documented because these are the most crucial times for brain growth and development. "

Having a young member in our family with synesthesia (seeing numbers as colours - neurons in the brain interlinked), I've just read the fascinating book, "Autism in Heels", by Jennifer O'Toole. She describes many of the 16 variations of autism, apparently, expressed very differently in girls and women, with synesthesia just one variation.

Best of luck in your search for answers.

[europegirl in reply to PInk54]

Thank you will look into reading this book!

[fbirder in reply to PInk54]

1 in 200 had low B12 levels.

Could this be a causal correlation? nbcnews.com/id/28543713/ns/...

It just seems a bit of a coincidence that 1 in 200 have low B12 and 1 in 200 are vegetarian.