I'm currently being investigated for Coeliac Disease and, as part of those investigations, was diagnosed with iron deficiency anaemia last year. My blood test results also showed a B12 level of 340ng/L.
I'd been taking the BetterYou B12 oral spray (240% EC NRV) for 12+ months. I contacted the B12 charity here in the UK and was advised that the supplement was "masking" a B12 deficiency.
I increased my supplement intake (Solgar Methylcobalamin 1000mg, 1-2 sublingual tablets a day) and, when I had blood tests in April because I was feeling improved but still not at my normal energy, my B12 was 1087ng/L.
My doctor told me to stop taking the supplement. In the seven months since then, I have slowly become more unwell and symptomatic:
- exhaustion (tired doing small things like washing my hair, reaching top kitchen shelf, etc) to the point of being bedbound;
- feeling smothered in my heart and brain as though they are not getting enough oxygen;
- tingling in my hands and feet to the point of pain;
- hair loss;
- a twitch in one eye;
These are the same symptoms that I experienced last year when I was told that I was "masking" my deficiency and so I began to take B12 supplements again.
I've taken Jarrow Methylcobalamin 5000mg (one tablet each day) for the last five weeks and my strength has improved enough to get to my GP for blood tests.
The results show a B12 level of 1059ng/L. My serum folate is 7.9ug/L. My serum iron is 11.6umo/L.
My doctor asked if I had ever had B12 injections because my level was so high. I told her that I hadn't had injections, but that I was taking 5000mg a day.
She couldn't tell me (1) how the supplement affects my results or (2) what my 'true' B12 level might be.
Can someone please, please help? Is it possible that I have a deficiency that's being hidden by my supplements? Are my symptoms consistent with a deficiency?
I'm happy to give any other blood tests results if they'd help.