I’m so glad I have found this page.
I’m wondering if anyone can help me- in June 2017 I had a funny turn in work and had some blood tests (felt faint, drained and generally unwell) my b12 came back as 150 and ferritin 14 but hb was fine (can’t remember exact number) vitamin d was 45
I began replacement therapy of 6 vit b injections, and Ferrous fumerate 210mg TDS. And a follow up blood test after treatment, b12 came back as >2000 and ferritin 20.
I was referred to Gastro and underwent an OGD which was NAD. Was tested for coeliac-nad and PA which was NAD. I have also had an MRI of the bowel and that was NAD. Advised by gastro that it seems likely to be caused by diet (even tho I eat very well) and to continue with replacement therapy for 2 years then to stop and have levels checked again. Ferritin caused by heavy periods? (Although this is something I’ve always had and they’re not always heavy)
Since then I have been in contact with my Gp fairly often with similar symptoms, I seem to last for 10 weeks then I start to get neuro symptoms again, such as tingling in fingers and toes and brain fog!! I also feel faint quite often.
I have just had more bloods taken on Thursday to check levels but still awaiting results. My last blood test 5 months ago b12 was 300 and ferritin 30.
Does anyone know what could be going on? I’m at a loss and I don’t think my Gp understands how awful it makes you feel my consultant didn’t seem interested either.
Thank you in advance!