Pernicious Anaemia Society
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Body tingling

Last night I woke up just after dozing off to sleep. I woke up with severe tingling all over my body and burning sensation in my tongue. At first I thought it was a panic attack but nothing helped. I eventually went back to bed and slept but always waking up still tingly. It is still there this afternoon. Also tinnitus and a full feeling in my head. I put on a vitamin B12 patch which hasn't helped so much as i thought it would. Neck muscles a bit sore. This is the 2nd time this has happened although the first time it cleared up fairly quickly. I am sure it's connected to the pernicious anaemia. It's really horrible. Any suggestions please?

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Hi Margaret-S are you supplementing with folic acid?

It is important that your Folate level is monitored as this is essential to process the B12.

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

Symptoms of a folate deficiency can include:

symptoms related to anaemia

reduced sense of taste

diarrhoea

numbness and tingling in the feet and hands

muscle weakness

depression

Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body.

I am not a medically trained person but I've had P.A. (a form of B12 deficiency) for more than 45 years.

I wish you well

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Thankyou Clive. It's good to see you on here. I will get this checked out again although the last doctor I saw said everything was fine..At least at my last blood test. I am going through an extremely stressful situation just now. My husband took off abroad to work in Saudi Arabia and never came back. Next to no contact unless about house ets. He was never going to come back he said but out of the blue he is back in the island and getting his personal belongings. He and friends who he's staying with have been here twice and have one more trip to make. I thought I was doing well but possibly the stress was building up. I share this because I think the stress is probably having an effect. Sorry for bending your ear. Thankyou for your advice. ☺

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So saddened to read about your husband Margaret and that sort of stress can be very debilitating. Hopefully he will come to his senses and return home in due course.

My now wife (my first died over 25 years ago aged 46) was "deserted" by her husband leaving her with their five year old daughter and she was a single Mum until I came along 21 years ago. We met at Tesco where she was on the checkout looking very sweet and petite in the red and white spotted uniform back then. She wore no ring and worked out I was a "single" man (with a cat) and as I joined her queue week by week grew so impressed with her as she wrapped, chatted and totted up my bill that I decided "I could live with that". We married nearly a year later in 1996.

I guess the moral of my story is despite the trauma of tragically losing a wife of 27 years I've been blessed with a second, now of 22 years, plus a gorgeous stepdaughter to add to the two of my own.

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Thankyou for sharing your story too Clive. It would have been very hard for you to lose your wife but I am so happy that you met the lovely wife you have now and a wonderful step daughter too. I forgot to say that it's 3 years and 3 months since my husband went away. Anyway I have put on a second patch to see if that will help. They are 1000mcg but I got others home yesterday which are 5000mcg. All are the Vie patches. Don't know if that was a good idea or not but thought it might work out cheaper in the long run. The nurse ( APN) hadn't heard about the patches either. It's obviously that our GP's ets haven't a clue about this illness. All the best to you and your family Clive ☺

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Before my P.A. was diagnosed, I woke up in a panic one night, all numb and tingly down one side. I went to A&E, absolutely sure that I had had a stroke. All the scans and tests came back negative. It continued to happen occasionally until I finally got my P.A. diagnosis. Once started on jabs, the episodes went away. I can't really offer any answers, but just wanted you to know that you aren't alone.

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Thankyou very much topazrat. I appreciate you telling me. It helps to know that someone knows what it's like. Just hoping and praying it doesn't happen again. Take care ☺

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Hi there, i find that magnesium helps during periods of stress!!! They call it the calming nutrient. Probably why epsome salt baths help but i find dead sea salt baths (higher mineral content) and suppliments work better.

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Thankyou KimberinUS. It's so helpful to hear what helps others. That's why I find this sharing group so worthwhile. Hopefully you are managing ok? ☺

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