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Pernicious Anaemia Society
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Feeling anxious

I'm really looking for success stories here, please. My anxiety is through the roof about this diagnosis. I've had it for years and seemed to do ok on the monthly shot, but recently tried some new treatment for my hypothyroid and seemed to bring on a new set of neuro symptoms so I am "loading" up on b12 and not feeling so good right now. Some of these stories are making me so depressed! I need some happy recovery stories!

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Hi Rmilla1 it took thirteen years between gastric surgery for the removal of two thirds of my stomach at the age of 17 caused by a burst peptic ulcer and a diagnosis of P.A. and treatment with B12 loading injections. During this time I was plied with almost every antidepressant and antacid known to the medical profession.

I continue with my B12 injections for life and I'm still "clivealive" and over the age of 75.

It is not uncommon for some symptoms to appear to get worse before they get better as the B12 you are having injected starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.

I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.

A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery.

Some symptoms will "disappear" quite quickly whereas others may take months or even years. There is no set timescale as we are all different.

If you can get to see a doctor please also ask him/her to check your Folate level as this and B12 help your iron to make red blood cells and to function properly.

I wish you well

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Thanks Clive...folate and iron were good.


Rmilla1 - there is a huge crossover in symptoms between hypothyoroidism and B12 deficiency - I'd be inclined to think that the symptoms are more likely to be to do with the new hypothyroid treatment than B12 if that was the trigger to the symptoms.

would suggest that you take a look at the TUK forum


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Hi Rmilla1 - just a quick one because I'm at work !!! Yes, after 15 months off sick, I am on a phased return. Never thought I'd get here, and to be honest was completely unemployable at my worst, with cognitive problems, sensory overload, no concentration..... also many physical symptoms.

I've yet to get a diagnosis that sticks, have had 3 years of tests, consultations and procedures- got 2 hospital appointments next week and one the week after. No-one has given up on me: not my GP, not my employers. Trying to help myself: lots of vitamins and B12 injections every other day are helping me to get back to being me. Monthly shots didn't help me and I was gradually regressing.

It's gradual, it's working. Occasionally it doesn't work so well- trying to discover why by keeping diary. Staying hopeful and know I've come a long way.

So here I am, at work, telling you not to panic or worry. People on here have stopped me getting down or scared. Expect there to be "blips" and keep tracking progress.

topazrat has a happy tale to tell and a D-lightful poem. We are all different but we can all help each other find answers. Marz is very knowledgeable regarding managing thyroid and B12 conditions. Check them out too. Best wishes.


Poems are my way of dealing and coming to terms with things - it works for me. I've got a blog full of em. ;)


Hi Rmilla 1. I understand how you feel. Last year, while dealing with losing my right leg to bone tumors, I was feeling very badly. My anxiety was thru the roof, I was forgetting small words, I angered easily, ringing in my ear, tingling in my hands and had trouble sleeping. It wasn't until my oncologist ran a b12 panel. My level was 93. My primary started me on loading daily shots. Before that other tests were done. Instrinic factor was extremly high diagnosing me with PA. I also have the MTHFR gene mutation. I also have elevated MCV, MCH and always anemic. After the daily loading shots, I was put on weekly b12 shots. Right away I started feeling better. After a few months, most of my symptoms went away and feel much better today. Also, having fine hair that always bothered me, my hair thickened up. I can't believe what a difference the shots have made. My b12 level stays about 600 with this injection routine. They have changed my life.

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