Went to GP yesterday, after 3 months.
Haematology has now signed me off, all things being "normal" except raised MMA levels, so being sent for SIBO breath test in October, still no results from MRI brain scan taken on June 16th by Neurology, no results from Genetics lab either yet although they have advised Haematologist that they will be wasting their time as homocysteine levels "normal". Haematology want to send me back to Neurology but I don't know what else they can do for me since electronic nerve tests also "normal"and brain scan done already. He also told me last time that he didn't know much about B12 and told me I had a good case but needed to put it again to haematology.
Going round in ever-decreasing circles not helping my dizziness at all !
Excruciating pressure pain deep in groin checked and GP believes might be a hernia. Sending me for tests, although this was what GP said 2 1/2 years ago and various scans found nothing.
Told her some people have decided to self-inject with b12 and have had help from a practice nurse rather than having to learn from a video. She said ask one of the nurses and I told her they would not act without her authorising it.
Asked about a Dr's certificate for work, since they are expecting me to return in September after a year off sick (I teach). She said why don't I just go back and try ? Feel like she can't hear me at all. Nothing has changed for me since last year except I now have osteoporosis. And perhaps a hernia. And perhaps SIBO. Maybe even brain lesions, who knows?
Osteoporosis nurse said I should not be in daily pain with hip and back and to see GP, but GP says a certain amount of pain is to be expected.
Left in tears.
GP telephoned after surgery, said a lot of my symptoms sound like anxiety, offered anti-depressants, pain-killers, counselling. Told her I don't want them, that I considered it natural to be upset and disheartened after all this time.
Said I just want a diagnosis.
She has checked guidelines on B12 injections and is now reducing my injections to 1 every 2 months. She was concerned about what to write on my certificate, told her I have been very honest with my employers and kept them updated. I am not worried what she writes. My diary also seemed to concern her- she asked did I think all this was taking over my life? Bless her, she thinks I have a life.
I told her I felt it might help me get my life back. Someone somewhere knows what is wrong with me, will recognise these symptoms, will be able to give me a diagnosis. One that sticks this time. Even if there is no treatment. Cried again.
This morning, my partner asked me where all this questioning and research had got me. "Good question" as they say in the trade.