Hi, I was diagnosed with B12d 5 years ago. I had loading doses then quarterly injections. Last October I asked for all my previous blood test results and my tests from 5 years ago shows B12 was 156 (at that point, I had already been monitored for 2 years). It also showed folate was under range, but this was never mentioned to me and not treated.
Last year, I became more aware of tingling and buzzing in my feet. I brought all my symptoms up with another GP, she just took some blood tests and left it at that. I'd recently had my b12 injection so b12 showed up >1000.
The buzzing and tingling has gotten worse, spreading to both feet and up legs, and also numb big toes.
I went back to GP, a different one this time. I told her everything. She ordered blood tests. B12 was 548 and folate at bottom of range, ferritin in bottom 1/4. MCH is consistently over range. I told GP my b12 levels need to be maintained over >1000 to repair neuro damage. She laughed and asked where I'd heard that from. I told her about an amazing Facebook group. She laughed again. I mentioned having b12 injections every other day until there is no further improvement, then every 2 months. She laughed again and said I was wrong. She got out her BSCH? guide book and it said exactly what I'd just said! She then said that there needs to be a cut-off point for loading doses, then wouldn't discus it any further! She is sending me to gastro for my malabsorption and said all my questions would be better answered there. She diagnosed me with CFS. I'm not sure where to go with this now, will gastro be helpful?
I was wondering whether it is worth taking the holo tc or mma blood tests so I have a bit more info to give my GP and help me understand what's going on. my last B12 injection was 4 months ago, I wanted a clear blood test. I've just bought some spatone and methylfolate but haven't started on them yet!
I have Ulcerative colitis and mild asthma. Also mthfr gene.
Thanks for any help in advance!