Well yesterdays visit to my GP was a farce as predicted, and once again, despite taking my printed sheets ( from library here and links sent via forum) I came away in tears.
I took my partner with me as back up and another pair of ears and we both fared the same. Once again the Dr said "there is no indication on blood tests whatsoever that you are B12 deficient" I said my B12 was 402 in January pre op ..my symptoms of several years are much worse-could it be the nitrous oxide? He ignored this. My partner explained how my symptoms were getting much worse, that I can't function mentally, work or drive. I asked the Dr to look at my PAS symptom sheet on which 3/4 of the symptoms are ticked (all the neurological )
He wouldn't even look at it- he said you've given me this before (untrue) All I did last week were jot down some notes to remind MYSELF what I needed to discuss.
I asked that they be scanned into my notes.
I also gave him PTF downloads (printed out) from PAS about guidelines for treating B12 deficiency if there are neurological symptoms. He said well you were diagnosed with Functional Neurological Disorder last year !! Yes I agreed- and it's much much worse plus I am very short of breath and rather grey in colour and can't pee properly...do you think it COULD be lack of B12 causing ALL of this?? He wouldn't even LOOK at the downloads. I tried to show him guidelines for treating B12 with normal levels if there are neuro symptoms- he pushed the paper back to me. As he did with the Alert and guidance for medical practitioners.
He flatly refused to repeat B12, said Homocysteine blood test unavailable in Primary care and repeated I had no abnormal large RBC and B12 levels were normal in January .I asked him to scan all my downloaded info into my notes too.
Very, very reluctantly he agreed to an Intrinsic Factor test to put my " mind at rest". I've had that done this am. I also had my active B12 test arrive from Medichecks this am so I've done that and posted it.
He did my temperature, pulse and B/P and said all were normal. By this time he was talking over the top of me and my partner and I could see we were near the end of our 10 minutes.I once again asked him to look at the whole picture of my symptoms PLEASE. He said my breathlessness was of some concern and he ordered a chest xray ( which I had this morning) and a lung function test ( end of the week) I said as all these things ARE symptoms please please read the print outs and consider what I am saying. His actual words about the evidence on paper from PAS, extracts from BNF and Haematological Society were, " I don't believe any of this". How can he NOT widen his thinking and get out of his box just a little?
I asked for a Helicobacter test as I have also got heartburn. He agreed to this through glazed eyes.
So...how do I deal with him ? I feel so beaten down and so unwell. I have had such difficulty passing urine this last few weeks too. He didn't address that either. This am when I went for bloods , I asked for a specimen pot and gave a urine sample. the nurse was kind enough to test it- full of white blood cells. Understandably a UTI now as not able to empty bladder. No symptoms though. Really at my wits end now- she was going to discuss it with the Dr and send to the lab too, but I've heard nothing back about antibiotics yet.
I guess the next thing is to put it in writing to the Practice Manager...possibly after Intrinsic factor result. I know this isn't definitive either
Sorry for long rant. I have a horrible feeling I am going to end up in hospital at this rate. Thank you for listening! I'm sure many can sadly relate to these experiences