I have decided to go privately to be tested for pernicious anaemia. Not very happy with the cost, esp as I decided to do a full thyroid test. I have Hashimoto and they only test TSH. I am sure my GP is not going to approve the tests and I can't go through another battle!
I had about 19 B12 injections between end of September and 5th December? Will the results be skewed? esp the Active B12, the Intrinsic factor and the parietal cell antibodies?
Last January, when I first had neurological symptoms, my GP tested me for IF and parietal cell antibodies. Then, she said everything was normal and I need to do eat more food rich in B12. But when I asked for a printout, the result for the IF was negative ( no figures, no range... just negative) and there was no answer for the parietal cells - saying it was not required because the IF was negative but at the same time they said Result to follow? But it never followed? So, I am at a loss what to think. Do we need a test for parietal cell antibodies if we test negative for IF? why do GPs fail to acknowledge that these tests are not excellent markers of B12 deficiency and they need to treat the clinical symptoms - not the blood tests?
I have neurological symptoms and although they got better while I was having the injections, my GP decided to stop the injections. He said I had enough in my body to treat the neurological symptoms!!!! 2 months later on I am struggling. I am not as bad as before but I believe my B12 levels are dropping rapidly and that is why my symptoms get worse. I am 49 year old and It is terrifying that I walk like a 1year old when I get up first thing in the morning. I would like to be able to use these results when I see my GP to talk about it. I am also going to see a neurologist in 2 weeks. I am trying to be as prepared as possible for our appointment. I even thought of taking a video of myself having difficulty walking in the mornings! Will the neurologist think I am nuts if I walk in with a video, blood tests and the pernicious anaemia leaflets? Do I care? My first reaction is NO but then I am wondering what if they think I am hypochondriac and they send me home without giving me any tests?
Has anybody tried Medichecks? I will do the tests in a clinic and then post them. Do you think the GP will doubt the results if done in this way? I can hardly afford to go privately and if I am doing it, I want to make sure everything is done properly.
Thank you for listening!