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Pernicious Anaemia Society

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Interesting read

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health-boundaries.com/finge...

please remove if not approved Admin

[Admin edit to fix broken link]

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Justified
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16 Replies
Foggyme profile image
FoggymeAdministrator

Hi Peggylally66. The link comes up with an error message 404 not found...this page does not exist...??

👍

Link now fixed 👍

helvella profile image
helvella in reply toFoggyme

Peggylally66 has put ...please at the end of the link without a space inbetween.

Simply remove that from the end of the link in your browser address bar - is easy on a PC but not necessarily quite so easy on a phone.

An admin or the orginal poster could edit the post. Or use the link below:

health-boundaries.com/finge...

Foggyme profile image
FoggymeAdministrator in reply tohelvella

Good spot helvella...many thanks 👍

Justified profile image
Justified

I have made a space now....does this help ?

Foggyme profile image
FoggymeAdministrator in reply toJustified

All working now 👍

pugdogs10 profile image
pugdogs10

Interesting article Peggylally66, I have had these ridges for over 40 years and more recently no half moons. I was diagnosed with PA 11 yrs ago and have increased the frequency of injections to weekly over the years. In spite of this my fingernails have not improved. Could this be one of the residual symptoms which will never go away....we are learning more and more but there is still so much that we do not understand.

I wonder how many other people have similar experience and how long we may have had this illness before we had symptoms or were diagnosed?

Marymary7 profile image
Marymary7

Really good article and lots of good links too, thank you. I have those exact nails! I'm not diagnosed b12 deficient but doc said my red blood cells were enlarged but seemed puzzled as the b12 was fine? So I think I have PA or some similar problem as well as underactive thyroid.

I have just got Superior Source B12 1000 mcg plus B6 & Folic Acid sublingual tablets and wonder what they will do for me.

M😀

pugdogs10 profile image
pugdogs10 in reply toMarymary7

Do you know what your B12 serum level was when your doctor said it was " fine" Marymary7, sometimes doctors say it is fine when it is not.

Marymary7 profile image
Marymary7 in reply topugdogs10

pugdogs10 No I don't know what it was then but I understand it a lot better now. That was a few years ago, I only have one from 2013

It was 439, range 180- 1000, Ferritin 44, range 10-300. Folate 13.1 >4. MCV 92.1 80-100

Cheers,

M😀

Justified profile image
Justified

I have no half moons, brittle nails with ridges & left thumb nail keeps splitting right down the nail. I was diagnosed with b12 deficiency last summer which they treated with 5x loading doses,no follow up. I had to plead with my doctor to keep up treatment which she has agreed to for neurologiical problems. I had to self diagnose thrombocytopenia even though I had shown photos of all my bruising on my legs along with history of nose bleeds, staggering, exhaustion, freezing cold hands & feet, and doc didn't try to find out what this was. On reading into it more I discovered this is common with h pylori infection so I had to ask to be tested. Turns out I was positive for hpylori. I have had triple therapy but think the damage has been done for so long that I'll never recover fully. I now SI along with monthly injections. I asked to be tested for intrinsic factor & parietal cell antibodies. Stopped injections for two weeks as required,which made me really low. Just got word that the samples had hemolysed so I'll need to go through it all again but I'm too depleted at the moment !!!

pugdogs10 profile image
pugdogs10

Given that you are on monthly injections and also SI, I doubt if there is any point in having the tests anyway, IF test is very inconclusive and positive parietal cell test on its own proves nothing.... so when you are getting monthly injections what would be the point in putting yourself through it?

Justified profile image
Justified in reply topugdogs10

I have thought that myself pugdogs10 . I wanted to find out if h pylori has damaged my parietal cells permanently or if I can look forward to feeling better without all the injections eventually.thing is...I have presented with these various symptoms which have all been ignored for many years and been told it's depression or simply just been given painkillers & at one point blood pressure tablets for my extremely painful cold hands & feet even though blood pressure was normal. I suppose I should just leave things be for now & not keep searching for answers now that I know the reason for my deficiency.. Thanks for helping me make up my mind

pugdogs10 profile image
pugdogs10 in reply toJustified

Just a thought...have you ever had thyroid tests?

Justified profile image
Justified in reply topugdogs10

Yes... That's when they discovered b12,vit d and folate deficiency.

Marz profile image
Marz in reply toJustified

Do you know what was tested for the thyroid - and do you have the results ? Often Docs just test the TSH - when the FT4 FT3 and Thyroid Anti-bodies Anti-TPO and Anti-Tg should also be tested :-)

Justified profile image
Justified in reply toMarz

Marz . I don't know but I will find out & get back thanks

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