Hello - this is my first post here - I am usually on the Hughes Syndrome section of Health Unlocked.
I was diagnosed with Hughes in April this year after 20 years of ill health. I had two booster shots of B12 12 years ago and that was all - just a precaution I was told.
Now further on-going tests for the Hughes shows I may also have Lupus and that I am B12 deficient but folate levels are normal. I didn't think folate could be ok but B12 not ???? Does anyone else have same? What is the difference between folate and B12?
I am about to have 5 shots of B12 over the next two weeks and then one every 2 or 3 months lifelong. I am also going to be tested re PA as I have a diet rich in B12 but they reckon I just don't absorb it.
Looking at the PA symptoms I was staggered to find I have most of them I am particularly upset by the neurological problems as I have read they will probably remain despite treatment as I have had them for so long - confusion, memory loss, slurred speech, numbness and tingling.
Trying to remain cheerful but I have 14 doctor/hospital appointments during October and it all feels so odd - at least I am being looked after I guess - pity it took 20 years and two lost babies......
Thank you for reading this far.