Hi , if I post all my details I hope someone can help.
I'm a headteacher who only works , too tired for any play . No children of our own ( see below) so when I'm not working (60hrs a week 45 weeks a year) I'm trying to rest to go back to work , never go out , never see my family anymore. Hate going out because I'm so tired I have to make excuses to leave early which causes husband arguments .
I have a history of on/off chronic fatigue after being diagnosed with cfs when I was around 22. I've had better times and worse times.
I was originally tested for b12 as part of endo tests to work out why I had an itchy inflamed bottom (blush) 18 years ago in 1998. They ended up saying it was b12 deficiency and I had two b12 injections and then it was discontinued after blood tests showed it was high and never followed up. However bottom issues carried in for another 14 years until I was eventually diagnosed with flexor psoriasis- tiny bit of right steroid and 14 year nightmare over ..
B12 2000+ ( not supplemented for 6 months +)
Iron in low end of range but normal
TSH in normal range
Slightly raised liver tests
Borderline red cell size but other FBc ok
( though I hardly drink at all due to reflux)
Extreme tiredness - not off work , but no life other than work
Not reacting well to stress, veering between mild depression to anxiety
Can't walk down stairs without gripping hold staircase and taking one step at a time as if I'm going to fall down
Last two years difficulty walking without concentrating , I feel I have to concentrate to walk normally , I am self conscious about it
Massive weight gain as I feed myself with sugar to try to eliminate brain fog ( 6 stone +)
Stomachs issues - reflux daily ,( hiatus hernia -,took ppi ant acids for ten years until xmas last year when I stopped as i had a low iron blood test and found it was reducing absorption of everything), mild diarreah daily, food gets stuck in my throat and I have to vomit even at work, I often "breathe" in food rather than swallowing it and end up with coughing fits
Teeth grinding at night time, have to wear mouth guard
Ankle swelling in slightest heat/ in activity
Strange cramps in fore arm leading to hand turning into claw
Rapidly decreasing eyesight ( I'm 48) night blindness , cant drive well in the dark
A lot of eyelid twitching
Feet hurt with little walking - in the morning , or if I get up in the night , or if I have been sitting / driving for more than 20mins, I can hardly walk at all
All my joints hurt ( no RA) GP thinks it's osteo but I'm sure you can't get osteo in all joints at same time ( when knee cartledge done 4 years ago told there was no sign of osteo) very stiff joints adding to difficulty walking
On going back and sacro issues and right hip - pay to see a chiropractor every three weeks for deep massage to release muscles - time off work when it's so bad I can't stand up.
Fertility issues despite 4 rounds ivf failed . Miscarriages . No one ever mentioned my massively high b12 . Current general perimenopause.
Breathlessness on even mild moving ( despite I was v fit cycling up hills etc up to 2 year ago- now too tired)
An array of animal allergies and asthma ( not linked to breathlessness)
I have a telephone GP appointment on Thursday after I ( thanks so much to this site) found out that after having high b12 for many years and repeatedly seeing the doctor and always told "oo your b12 is very high but I think that's ok " - even by the local authority area lead gp! I went to see go last week who was not happy that I was questioning him. I demanded mma and homocysteine and active b 12 tests.
I was hoping there might be anyone out there who might read my results and offer more comments I can give to my gp on Thursday.