I just wanted to encourage all those struggling to get B12 treatment to not give up.
I have just looked at the date on my first post on the PAS forum. It was 3 1/2 years ago and I had been suffering for a while before.
To cut a long story short, I have had all the symptoms of B12 anaemia, including iron and folate deficiency for years. B12 levels have been as low as 256 but as above the reference range no treatment was offered other than anti-depressants. Over the past 2 years both my mum and my daughter were diagnosed with PA and started treatment. I had had enough!
I switched doctors surgery yet again and went armed with all the research I had done (I studied haematology at university and was very well aware of the UK reference ranges in comparison to many other countries). I argued my case and despite the family history the doctor argued that she couldn't treat every person within the reference range. However, she did agree to do her own research and get back to me.
Fast forward 3 weeks and a phonecall from the surgery telling me that the doctor wanted to discuss my B12 results. She had not been able to find evidence that reference ranges should be higher in the UK but had found evidence to show that some have symptoms at higher levels and have improved with treatment. She agreed to a 6 month trial of B12 injection and retest of bloods and discussion after that time.
I was ecstatic! It is so noticeable the difference the treatment has made, even to my family and colleagues. So, please don't give up, there are doctors out there willing to consider higher levels.