Newbie wants to help husband and hers... - Pernicious Anaemi...

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Newbie wants to help husband and herself...

milupa profile image
8 Replies

Hello everyone - I am new to this forum and topic. My husband (63) and I (51) both have hypothyroidism, high heavy metals, pyrolluria, diffuse inflammation, histamine intolerance and more. We also both seem to have absorbtion problems because, since finding low levels of, amongst others, magnesium, B12, B6, zinc, D3 we have dilligently supplemented with the best forms of each, cleaned up our diet even more - and yet the levels don't come up. We are both on T3 only. I have read a lot and am still confused:

Would somebody here be so kind to tell me which tests I should get done?

I tried to keep it short but hope I gave enough info!

Thanks in advance

milupa

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fbirder profile image
fbirder

I would ask my GP, and I would ask him for a referral to a gastroenterologist. They may want to stick a camera inside your stomach and duodenum to check it out.

milupa profile image
milupa in reply to fbirder

Thank you for the quick reply! The GP just keeps upping the amount of everything we take. I wanted to go into the next appointment armed with something.. blood test results maybe?

My husband had h pylori successfully treated a year ago, I'm negative. We take betaine hydrochloride with food and are gluten free.

milupa

Strictly speaking you are symptomatic and there are tests such as uMMA , HoloTC , Serum MMA , Gastrin , Intrinsic factor antibody , Parietal cell anti body , Gastric secretion analyasis and peripheral blood smear , plus an active b12 test . You could have a genetic test for MTHFR . What you probably need to do is get some methylcobalamin supplement , which is an active form of b12 that is not available on the NHS . It is already in a converted state so your body does not have to . I would also look at taking a spoonfull of black strap molasses each day to get your iron levels up a little . This type of molasses contains trimethylglycine which will help to lower your homocysteine level . It also contains iron and b6 . I would also drink the best quality beetroot juice I can find as beetroot contains cobalt and the useful trimethylglycine . Eating fermented foods such as Korean Kim Chi is a good idea . You will find that when you use the active forms of b12 you will notice a difference .

milupa profile image
milupa in reply to illnesswhatillness

Thank you so much for your helpful reply! We have both been on the methyl version from the start, I also had B12 infusions but developed an allergy to it and had to stop.

I will get clued up on all the tests you mention and discuss the order of importance with the GP.

Trimethylglycine is a new one for me, I will look into it. I eat a lot of beetroot (autoimmune diet) and will happily add the juice. Kimchi and fermented food are a problem re high histamine, but so delicious I will have it more often.

Thanks again

Marz profile image
Marz in reply to milupa

Higher Nature do a TMG supplement I believe .....

milupa profile image
milupa in reply to Marz

Thank you! Something else to learn about...

fbirder profile image
fbirder

Not this blackcrap molasses rubbish again.

Yes, it contains iron - about 4.7 mg in 100 g of molasses.

Yes it contains TMG - about 1 mg in 100g of molasses.

You'd have to eat about 4 kg of molasses to get the same amount of iron and TMG in just one of my iron sulfate and TMG pills.

This is woo-woo rubbish of the highest order. It's such a monumental fail that it's not even wrong.

Compared to that, the stuff about methylcobalamin being the only type of B12 worth taking is just ordinarily wrong. Methylcobalamin is AN active form, not the active form. Hydroxocobalamin is more stable and tends to be cheaper and more easily available. And, for the vast majority of the population, it is easily converted to both active forms.

helvella profile image
helvella in reply to fbirder

The blackstrap molasses people must have done a stonking job of promoting their product. :-)

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