Hi,i was diagnosed with p a 4 years ago after 2 years of going back and forth to doctors with symptoms of it but was never picked up,had a level of 116 then. Had almost every symptom going,neurological ones also,but only had loading jabs and then put onto 3 month cycle. I have got my level up to 417 in the 4 years ive been having jabs. Recently i have been experiencing extreme numbness waist down,went to doctors and he said it could be lots of different things and tried to blame it on my diabetes but this is very well controlled with a hba1c of 34. He eventually referred me to haemotologist. I ended up going to A n E with the numbness as doctors surgery didnt want to do anything about it. Registrar could see it all pointed to the pa so hand wrote me a letter to give to doctors saying i needed jabs every other day. I had these for 2 weeks until i saw the haemotologist, he took bloods and wanted me to stop taking the jabs for 2 weeks have more bloods to see what level had dropped by. Sensations were changing in my legs for the 2 weeks i was on jabs,burning calfs and feet and sometimes tingled but now i havent had them for 2 weeks and due to start up again monday my legs feel like they are vibrating if knocked or banged. I felt so much better while i was on jabs every other day but i have crashed again. Didnt know if anyone knew if vibrating is nerves reparing??
Sorry for lengthy post. Thanks to anyone who helps.