I was diagnosed b12 and folate deficient ( b12 179 and folate 2 ) MCV of 103, IFA negative, also had endoscapy which didnt show up any gastric atrophy just benign polyps. I have plenty of neurological symptoms, tingling in limbs, sight distubance, tinnitus, a very foggy head etc. I had been on ppis for app 5 years ( now stopped )
Following a fight with gp he conceded to 10 loading dose jabs alongside folic acid tabs, also been supplementing with 5000 Swansons sublinguals.
When the jabs had finished I went back to gp to inform him that I needed to be treated as per the bcsh guidelines. Jabs every other day until there is no further improvement.
He wouldnt do anything until he had done my bloods.....I knew what was coming.
B12 was over 2000, folate was 22, mcv down to 101 (or was that the effect of the folic acid. He flatly refused any more b12 as I was now at dangerous levels (really ?)
I told him that he must treat the clinical symptoms and not the blood results and showed him this in fbirders summary document.
I have to say that I feel much better in myself but the jabs didn't affect any of the neuropathy in any way.
So what is my next move ?
1, write to gp and practice manager to clarify the decision and ask why the practice will not follow all the guidelines?
2, stop supplementing and obtain an active b12 test privately in a few weeks time ?
3 continue with high levels of sublinguals until I go through gp process ?
I am a litte reluctant to self inject at this stage, what do you think ?